Because of COVID-19 outbreak, regular clinical services for Parkinson's disease (PD) patients have been suddenly suspended, causing worries, confusion and unexpected needs in such frail population. Here, we reviewed the messages spontaneously sent by patients to an Italian PD clinic during the first two weeks of COVID-19 lockdown (9-21 March 2020), in order to highlight their main needs and then outline appropriate strategies of care for this critical period. One hundred sixty-two messages were analysed. Forty-six percent queried about clinical services; 28% communicated an acute clinical worsening for which a therapeutic change was done in 52% of cases; 17% (those patients with younger age and milder disease) asked about the relationship between PD and COVID-19; 8% informed about an intercurrent event. Our analysis suggests that PD patients' needs during COVID-19 emergency include appropriate and complete information, a timely update on changes in clinical services, and the continuity of care, even in a remote mode. By addressing these issues, acute clinical worsening, complications and subsequent therapeutic changes could be prevented. In this perspective, telecommunication systems and virtual medicine should be implemented.

中文翻译：

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意大利 COVID-19 紧急情况期间帕金森病患者的自我报告需求。

由于 COVID-19 的爆发，为帕金森病 (PD) 患者提供的常规临床服务突然暂停，给这些体弱的人群带来了担忧、困惑和意外需求。在这里，我们回顾了患者在 COVID-19 封锁的前两周（2020 年 3 月 9 日至 21 日）期间自发发送到意大利 PD 诊所的信息，以突出他们的主要需求，然后概述针对这一关键疾病的适当护理策略时期。分析了 162 条消息。46% 的人询问临床服务；28% 表示出现急性临床恶化，52% 的病例对此进行了治疗改变；17%（年龄较小、疾病较轻的患者）询问 PD 与 COVID-19 之间的关系；8% 的人了解了一个并发事件。我们的分析表明，PD 患者在 COVID-19 紧急情况下的需求包括适当和完整的信息、及时更新临床服务的变化以及护理的连续性，即使在远程模式下也是如此。通过解决这些问题，可以预防急性临床恶化、并发症和随后的治疗变化。从这个角度来看，应该实施电信系统和虚拟医学。