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Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures.
Current HIV/AIDS Reports ( IF 3.7 ) Pub Date : 2020-05-02 , DOI: 10.1007/s11904-020-00489-z
Celia B Fisher 1 , Elise Bragard 2 , Rachel Bloom 2
Affiliation  

PURPOSE OF REVIEW Along with the benefits of eHealth HIV interventions are challenges to participant privacy and confidentiality inherent in the use of online strategies. This paper reviews current guidelines and recent publications to identify ethical issues and suggested solutions in recruitment, data management, and informed consent. RECENT FINDINGS Across eHealth HIV research, recruitment, data collection, and storage efforts to protect informational risk highlight the tension between the investigators' ability to protect participant confidentiality and the evolving informational risk posed by the online platforms on which they are operating. Adequately addressing these challenges requires updating technical competencies and educating participants on their own responsibilities to guard against privacy violations. Additional protections are required when interventions involve peer or community support, especially with minors. The rapid progression of technology presents challenges in solidifying best practices for future interventions. This article draws on published works describing investigator experiences to contribute to the ongoing development of guidance in this area.

中文翻译:


HIV 电子健康干预研究中的伦理考虑:对招募、数据维护和同意程序中信息风险的影响。



审查目的 除了电子卫生艾滋病毒干预措施的好处之外,在线策略的使用也对参与者的隐私和保密性提出了挑战。本文回顾了当前的指南和最近的出版物,以确定道德问题并提出招聘、数据管理和知情同意方面的解决方案。最近的调查结果显示,在电子健康艾滋病毒研究、招募、数据收集和存储工作中,保护信息风险的努力突显了研究人员保护参与者机密性的能力与他们所运营的在线平台所带来的不断变化的信息风险之间的紧张关系。要充分应对这些挑战,需要更新技术能力,并教育参与者了解自己的责任,以防止侵犯隐私。当干预措施涉及同伴或社区支持时,尤其是针对未成年人,需要额外的保护。技术的快速发展给巩固未来干预措施的最佳实践带来了挑战。本文借鉴了描述研究者经验的已发表著作,为该领域指南的持续发展做出贡献。
更新日期:2020-05-02
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