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Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures.
Current HIV/AIDS Reports ( IF 4.6 ) Pub Date : 2020-05-02 , DOI: 10.1007/s11904-020-00489-z
Celia B Fisher 1 , Elise Bragard 2 , Rachel Bloom 2
Affiliation  

PURPOSE OF REVIEW Along with the benefits of eHealth HIV interventions are challenges to participant privacy and confidentiality inherent in the use of online strategies. This paper reviews current guidelines and recent publications to identify ethical issues and suggested solutions in recruitment, data management, and informed consent. RECENT FINDINGS Across eHealth HIV research, recruitment, data collection, and storage efforts to protect informational risk highlight the tension between the investigators' ability to protect participant confidentiality and the evolving informational risk posed by the online platforms on which they are operating. Adequately addressing these challenges requires updating technical competencies and educating participants on their own responsibilities to guard against privacy violations. Additional protections are required when interventions involve peer or community support, especially with minors. The rapid progression of technology presents challenges in solidifying best practices for future interventions. This article draws on published works describing investigator experiences to contribute to the ongoing development of guidance in this area.

中文翻译:

HIV eHealth干预研究中的道德考虑:招聘,数据维护和同意程序中信息风险的含义。

审查的目的除了电子卫生保健的好处外,HIV干预对使用在线策略固有的参与者隐私和保密性也构成了挑战。本文回顾了当前的指南和最近的出版物,以识别道德问题以及在招聘,数据管理和知情同意方面的建议解决方案。最近的调查结果在整个eHealth的HIV研究,招募,数据收集和存储工作中,为保护信息风险而开展的工作突显了调查者保护参与者机密性的能力与他们所使用的在线平台不断发展的信息风险之间的紧张关系。要充分应对这些挑战,就需要更新技术能力并教育参与者自己的责任,以防止侵犯隐私。当干预措施涉及同伴或社区的支持时,特别是在未成年人的支持下,则需要额外的保护。技术的飞速发展为巩固未来的干预最佳实践提出了挑战。本文借鉴了已发表的著作,这些著作描述了研究者的经验,从而为该领域指南的不断发展做出了贡献。
更新日期:2020-05-02
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