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Building up the “Accountable Ulysses” model. The impact of GDPR and national implementations, ethics, and health-data research: Comparative remarks
Computer Law & Security Review ( IF 3.3 ) Pub Date : 2020-04-26 , DOI: 10.1016/j.clsr.2020.105413
Denise Amram

The paper illustrates obligations emerging under articles 9 and 89 of the EU Reg. 2016/679 (General Data Protection Regulation, hereinafter “GDPR”) within the health-related data processing for research purposes. Furthermore, through a comparative analysis of the national implementations of the GDPR on the topic, the paper highlights few practical issues that the researcher might deal with while accomplishing the GDPR obligations and the other ethical requirements. The result of the analyses allows to build up a model to achieve an acceptable standard of accountability in health-related data research. The legal remarks are framed within the myth of Ulysses.



中文翻译:

建立“负责任的尤利西斯”模型。GDPR与国家实施,道德和卫生数据研究的影响:比较说明

该文件说明了根据欧盟法规第9条和第89条产生的义务。2016/679(通用数据保护条例,以下简称“ GDPR”)中与健康相关的数据处理,用于研究目的。此外,通过对有关该主题的GDPR在全国范围内实施情况的比较分析,本文重点介绍了研究人员在完成GDPR义务和其他道德要求时可能要处理的实际问题。分析的结果允许建立一个模型,以在健康相关数据研究中达到可接受的责任标准。法律言论以“尤利西斯”神话为框架。

更新日期:2020-04-26
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