Using a work domain analysis and complementary thematic analysis, this paper aims to describe medication management work, its constraints, and complexities from the perspectives of family caregivers of children with medical complexity—a medically fragile segment of the pediatric population often dependent on multiple and complex medication regimens for survival and optimal functioning. Analyses were informed by data generated through observations of 12 care coordination clinic visits within a pediatric complex care program, semi-structured interviews of 11 family caregivers, and reviews of program documents. Our results show that family caregivers: (1) formulate medication management goals, identify values and criteria to judge goals but these may not necessarily be acknowledged and explicitly supported by system resources and healthcare professionals (2) are engaged in a range of complex medication management tasks that are both physically and emotionally demanding without the support of well-designed tools and resources to enhance their work.

本文使用工作领域分析和补充主题分析，旨在从医疗复杂儿童的家庭护理人员的角度来描述药物管理工作，其制约因素和复杂性。儿童是医疗脆弱的儿童人群，通常依赖于多种多样和复杂生存和最佳功能的药物治疗方案。通过对儿科综合护理计划中12次护理协调门诊的观察，对11名家庭照顾者的半结构化访谈以及对计划文件的审查所产生的数据来进行分析。我们的结果表明，家庭护理人员：（1）制定药物管理目标，