Breaking the news to parents that their child has cystic fibrosis [CF] is most frequently given in the first few weeks of the baby’s life as a result of newborn screening. This is optimal to reduce morbidity but can have a significant impact on the parents’ mental wellbeing and the parent–child relationship. Parent feedback indicates that assimilating the diagnosis is not a one-off event but a process that takes time. CF professionals therefore need to be aware not only of how they communicate the diagnosis initially but also the ways in which families make sense of this throughout at least the following year. The parent–patient–team relationship is essential to good health outcomes. Key objectives of this paper are to enable: (1) understanding parental responses to the diagnosis which can indicate how well they are managing CF for their child, (2) improving the way in which the diagnosis is communicated and, (3) changing team management of CF in the early years to include parental collaboration to support better mental and physical outcomes.

向父母宣布他们的孩子患有囊性纤维化 [CF] 的消息最常发生在婴儿出生后的最初几周，这是新生儿筛查的结果。这是降低发病率的最佳方式，但会对父母的心理健康和亲子关系产生重大影响。家长反馈表明，吸收诊断不是一次性事件，而是一个需要时间的过程。因此，CF 专业人员不仅需要了解他们最初是如何传达诊断的，而且还需要了解至少在接下来的一年中家人如何理解这一点。父母-患者-团队的关系对于良好的健康结果至关重要。本文的主要目标是：(1) 了解父母对诊断的反应，这可以表明他们为孩子管理 CF 的程度，