BACKGROUND Children show long-term psychological distress if family communication and illness-related information are poor during and after a parent's illness and death. Few psychosocial interventions for families with minor children living with a parent who has a life-threatening illness have been evaluated rigorously. Even fewer interventions have been family-centered. One exception is the Family Talk Intervention (FTI), which has shown promising results regarding increased illness-related knowledge and improved family communication. However, FTI has not yet been evaluated in palliative care. This study therefore aimed to explore the potential effects of FTI from the perspectives of minor children whose parent is cared for in specialized palliative home care. METHODS This pilot intervention study involves questionnaire and interview data collected from children after participation in FTI. Families were recruited from two specialized palliative home care units. To be included, families must include one parent with life-threatening illness, at least one child aged 6-19 years, and understand and speak Swedish. Twenty families with a total of 34 children participated in FTI; 23 children answered the questionnaire, and 22 were interviewed after participation. RESULTS The children reported that FTI increased their knowledge about their parents' illness. They said the interventionist helped them to handle school-related problems, establish professional counselling, and find strength to maintain everyday life. Children aged 8-12 reported that talking with their parents became easier after FTI, whereas communication was unchanged for teenagers and between siblings. Children also reported having been helped to prepare for the future, and that they benefitted from advice about how to maintain everyday life and minimize conflicts within the family. CONCLUSIONS Children who participated in FTI reported that it was helpful in many ways, providing illness-related information and improving family communication when a parent has a life-threatening illness. Other potential positive effects reported by the children were that FTI facilitated their preparation for the future, decreased family conflicts, and started to build up resilience. TRIAL REGISTRATION ClinicalTrials.gov, Identifier NCT03119545, retrospectively registered 18 April 2017.

中文翻译：

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当父母接受姑息治疗时，家庭谈话干预对家庭的影响——从未成年儿童的角度来看的潜在影响。


背景技术如果在父母患病和死亡期间和之后家庭沟通和疾病相关信息不佳，儿童会表现出长期的心理困扰。对于有未成年子女且父母患有危及生命的疾病的家庭，很少有心理社会干预措施经过严格评估。以家庭为中心的干预措施就更少了。一个例外是家庭谈话干预 (FTI)，它在增加疾病相关知识和改善家庭沟通方面显示出了可喜的成果。然而，FTI 尚未在姑息治疗中进行评估。因此，本研究旨在从父母接受专门姑息家庭护理的未成年儿童的角度探讨 FTI 的潜在影响。方法 这项试点干预研究涉及从参加 FTI 后的儿童那里收集的问卷和访谈数据。家庭是从两个专门的姑息家庭护理单位招募的。要纳入其中，家庭必须包括一名患有危及生命疾病的父母、至少一名 6 至 19 岁的孩子，并且能听懂并说瑞典语。 20个家庭共34名孩子参加了FTI； 23名儿童回答了问卷，22名儿童参与后接受了采访。结果 孩子们报告 FTI 增加了他们对父母疾病的了解。他们说，干预专家帮助他们处理与学校有关的问题，建立专业咨询，并找到维持日常生活的力量。 8 至 12 岁的儿童表示，FTI 后与父母的交谈变得更加容易，而青少年和兄弟姐妹之间的沟通则没有变化。 孩子们还表示，他们得到了帮助，为未来做好了准备，并从有关如何维持日常生活和尽量减少家庭内部冲突的建议中受益匪浅。结论 参与 FTI 的儿童表示，FTI 在很多方面都有帮助，可以在父母患有危及生命的疾病时提供与疾病相关的信息并改善家庭沟通。孩子们报告的其他潜在积极影响包括 FTI 促进了他们为未来做好准备、减少了家庭冲突并开始增强复原力。试验注册 ClinicalTrials.gov，标识符 NCT03119545，于 2017 年 4 月 18 日追溯注册。