Although public repository requirements are aimed at researchers and designed to ensure that the utility of the limited data we have is optimized, these policies also have ramifications for research participants. In this opinion article, I discuss how the nature of such repositories can subject participants whose data are 'banked' to unwitting participation in scientific projects they might find objectionable. In addition, concerns about the privacy of banked genomic data are exacerbated by recent projects that demonstrate the ability to re-identify genomic data, raising the specter of discriminatory or oppressive use of this information. These concerns are most likely to discourage participation in research that requires data sharing among those who have experienced these phenomena and are less likely to discount their likelihood.

中文翻译：

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公共存储库要求是否加剧了多样性的缺乏？

尽管公共存储库要求是针对研究人员的，旨在确保我们拥有的有限数据的效用得到优化，但这些策略对研究参与者也有影响。在这篇观点文章中，我将讨论此类存储库的性质如何使那些被“存储”了数据的参与者无意间参与了他们可能会反对的科学项目。此外，最近的项目证明了重新识别基因组数据的能力，加剧了对存储基因组数据隐私性的担忧，从而加剧了歧视性或压迫性使用此信息的可能性。这些担忧最有可能阻止参与需要在经历过这些现象且不太可能降低其可能性的人们之间共享数据的研究。