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Efforts of diversity and inclusion, cultural competency, and equity in the genetic counseling profession: A snapshot and reflection
Journal of Genetic Counseling ( IF 1.9 ) Pub Date : 2020-03-30 , DOI: 10.1002/jgc4.1241
Nadine Channaoui 1 , Kara Bui 2, 3 , Ilana Mittman 4
Affiliation  

Like its peer health professions, the genetic counseling field recognizes the need for and value of diversity, inclusion, cultural competency, and equity (DICE). However, despite decades of diversity initiatives, minimal gains in the percentage of genetic counselors with minority identities have been realized. In order to gather information about DICE efforts, two surveys were created and distributed to genetic service providers, trainees, and genetic counseling program faculty yielding a total of 76 responses. Additionally, a literature scan was performed to gain an understanding of past and ongoing DICE efforts in the career. Three emerging domains resulted from quantitative and qualitative analysis of the submitted data: (1) Categories of DICE Projects, (2) Parties Carrying Out DICE Projects, and (3) What is Missing? Overall, inclusion efforts are notably underrepresented among DICE projects. Also, DICE efforts are generally under‐supported, unfunded, and under‐recognized as work‐related responsibilities. To enhance DICE within the genetic counseling profession, we recommend developing additional research and projects focused on career inclusion and equity, implementing policies requiring DICE training for leaders within the field, encouraging project evaluation and outcomes dissemination, and creating a well‐maintained web‐based centralized repository for DICE resources.

中文翻译:

基因咨询专业的多样性和包容性,文化能力和公平性的努力:概述和反思

像其同行医疗专业一样,遗传咨询领域也认识到多样性,包容性,文化能力和公平性(DICE)的需求和价值。然而,尽管采取了数十年的多样性倡议,但已经实现了具有少数群体身份的遗传咨询师所占百分比的微不足道的增长。为了收集有关DICE努力的信息,创建了两个调查,并分发给了遗传服务提供者,受训者和遗传咨询计划学院,共产生了76个回复。此外,还进行了文献扫描,以了解过去和正在进行的DICE事业。对提交的数据进行定量和定性分析后,出现了三个新兴领域:(1)DICE项目的类别,(2)执行DICE项目的缔约方,以及(3)缺少什么?总体而言,DICE项目中包容性工作的代表性不足。此外,DICE的工作通常没有得到充分的支持,没有资金并且没有被认为是与工作相关的责任。为了在基因咨询行业中增强DICE,我们建议开展更多针对职业包容和公平的研究和项目,实施要求对该领域的领导者进行DICE培训的政策,鼓励项目评估和成果传播,并建立一个维护良好的基于​​Web的项目DICE资源的集中存储库。
更新日期:2020-04-22
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