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Education on cancer risk assessment and genetic counseling to address cancer health disparities among racial/ethnic groups and rural populations: Implementing culturally tailored outreach through community health educators
Journal of Genetic Counseling ( IF 1.9 ) Pub Date : 2020-03-21 , DOI: 10.1002/jgc4.1272
Sandra L. San Miguel‐Majors 1 , Damiya E. Whitaker 1 , Brian C. Davis 1 , LeeAnn O. Bailey 1 , Sanya A. Springfield 1
Affiliation  

While significant progress is being made in cancer prevention and treatment, opportunity exists to make a difference for populations bearing an uneven burden of the disease. Research indicates that increased inherited risk and more‐aggressive forms of cancer among underserved racial/ethnic (R/E) groups (e.g., African American/Black, American Indian/Alaska Native, Asian, Hispanic/Latino, and Native Hawaiian/Other Pacific Islander) and rural populations may explain the cancer incidence and mortality disparities these populations experience. These racial and ethnic (R/E) categories reflect the standard naming convention for the classification of federal data on race and ethnicity. One method by which progress can be made for these underserved populations is to expand knowledge of, access to, and uptake of two existing and impactful preventive oncology tools—cancer screening and genetic counseling and risk assessment (GCRA). Individuals from these populations who have cancer may benefit by learning about treatment options, risk projections for secondary cancers, and clinical trial participation. Effecting change in community beliefs and behaviors regarding these preventive tools and yielding the aforementioned benefits will see greater success if shepherded by individuals accepted and trusted in the respective communities. This was the charge taken on and embraced by Community Health Educators in the National Cancer Institute (NCI) Center to Reduce Cancer Health Disparities’ (CRCHD) National Outreach Network (NON) and U54 Comprehensive Partnerships to Advance Cancer Health Equity (CPACHE) programs. The NCI CRCHD integrated into the work of these CHEs an emphasis on cancer genetic education. As part of their undertaking, NON and CPACHE CHEs detail education and outreach strategies that may be helpful to increase GCRA awareness and uptake in R/E groups and rural populations and, in turn, bring positive change for those with or at risk for heritable cancers.

中文翻译:

关于癌症风险评估和遗传咨询的教育,以解决种族/族裔群体与农村人口之间的癌症健康差异:通过社区健康教育者实施针对文化的外展活动

尽管在癌症的预防和治疗方面取得了重大进展,但仍有机会为负担疾病负担不均的人群带来改变。研究表明,服务不足的种族/族裔(R / E)群体(例如,非裔美国人/黑人,美洲印第安人/阿拉斯加土著人,亚洲人,西班牙裔/拉丁美洲人和夏威夷原住民/其他太平洋地区)的遗传风险增加,癌症更具侵略性岛民和农村人口可能解释了这些人口经历的癌症发病率和死亡率差异。这些种族和种族(R / E)类别反映了对种族和种族联邦数据进行分类的标准命名约定。可以为这些服务水平欠缺的人群取得进展的一种方法是扩大对以下方面的知识,获取,并采用了两种现有的,有影响力的预防性肿瘤学工具-癌症筛查和遗传咨询与风险评估(GCRA)。这些人群中的癌症患者可以通过了解治疗选择,继发性癌症的风险预测以及临床试验参与来受益。如果在各个社区中被接受和信任的个人牧养,影响社区对这些预防工具的观念和行为的改变并产生上述收益,将会获得更大的成功。这是美国国家癌症研究所(NCI)减少癌症健康差异中心(CRCHD)的全国宣传网络(NON)和U54全面合作伙伴关系以促进癌症健康公平(CPACHE)计划中的社区健康教育者所承担的费用。NCI CRCHD纳入了这些CHE的工作,重点是癌症遗传教育。作为其工作的一部分,NON和CPACHE CHE会详细介绍教育和宣传策略,这些策略可能有助于提高GCRA对R / E人群和农村人口的认识和接受率,进而为患有遗传性癌症或处于遗传性癌症中的人带来积极的变化。
更新日期:2020-04-22
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