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Parents’ and healthcare professionals’ perceptions of the use of live video recording in neonatal units: a focus group study
BMC Pediatrics ( IF 2.0 ) Pub Date : 2020-04-01 , DOI: 10.1186/s12887-020-02041-9
Aude Le Bris , Nadia Mazille-Orfanos , Pauline Simonot , Maude Luherne , Cyril Flamant , Geraldine Gascoin , Gearóid ÓLaighin , Richard Harte , Patrick Pladys

The emerging use of video in neonatology units raises ethical and practical questions. This study aims to gain a better understanding of the suitability, limitations and constraints concerning the use of live video as a tool in neonatal clinical practice. The perceptions of parents and healthcare professionals in regard to live video were examined. Nine focus groups were conducted in four neonatal units involving 20 healthcare professionals and 19 parents. Data were triangulated using transcripts and field notes and analyzed using inductive and semantic thematic analysis. The seven major themes that emerged from the healthcare professionals focus groups were (i) the impact of video recording on healthcare professionals’ behavior; (ii) the impact on parents; (iii) forensic issues;(iv) guarantee of use; (v) benefits for the newborn; (vi) methodology of use; and (vii) technical considerations & feasibility. The five major themes that emerged from parents focus groups were (i) benefits for the newborn and care enhancement; (ii) impact on parents and potential benefits in case of newborn child/parent separation; (iii) informed consent and guarantee of use;(iv) concern about a possible disruptive impact on healthcare professionals; and (v) data protection. Both parents and healthcare professionals found video recording useful and acceptable if measures were taken to protect the data and mitigate any negative impacts on healthcare professionals.

中文翻译:

家长和医疗保健专业人员对新生儿病房使用实时视频录制的看法:焦点小组研究

影像学在新生儿科中的新兴用途引发了伦理和实践问题。这项研究旨在更好地了解使用实时视频作为新生儿临床实践工具的适用性,局限性和局限性。检查了父母和医疗保健专业人员对实况视频的看法。在四个新生儿科中进行了9个焦点小组的研究,涉及20位医疗保健专业人员和19位父母。使用成绩单和现场笔记对数据进行三角测量,并使用归纳和语义主题分析进行数据分析。医护人员焦点小组提出的七个主要主题是:(i)录像对医护人员行为的影响;(ii)对父母的影响;(iii)法医问题;(iv)使用保证;(v)对新生儿的好处;(vi)使用方法;(vii)技术上的考虑和可行性。父母焦点小组提出的五个主要主题是:(i)新生儿福利和护理改善;(ii)新生儿/父母分离时对父母的影响和潜在利益;(iii)知情同意和使用保证;(iv)对医疗保健专业人员可能造成破坏性影响的担忧; (v)数据保护。父母和医疗保健专业人员都发现,如果采取措施保护数据并减轻对医疗保健专业人员的负面影响,则录像是有用且可以接受的。(ii)新生儿/父母分离时对父母的影响和潜在利益;(iii)知情同意和使用保证;(iv)对医疗保健专业人员可能造成破坏性影响的担忧; (v)数据保护。父母和医疗保健专业人员都发现,如果采取措施保护数据并减轻对医疗保健专业人员的负面影响,则录像是有用且可以接受的。(ii)新生儿/父母分离时对父母的影响和潜在利益;(iii)知情同意和使用保证;(iv)对医疗保健专业人员可能造成破坏性影响的担忧; (v)数据保护。父母和医疗保健专业人员都发现,如果采取措施保护数据并减轻对医疗保健专业人员的负面影响,则录像是有用且可以接受的。
更新日期:2020-04-22
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