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Twin Family Registries Worldwide: An Important Resource for Scientific Research
Twin Research and Human Genetics ( IF 1.0 ) Pub Date : 2020-01-15 , DOI: 10.1017/thg.2019.121
Yoon-Mi Hur 1 , Leonie H Bogl 2 , Juan R Ordoñana 3 , Jeanette Taylor 4 , Sara A Hart 4 , Catherine Tuvblad 5 , Eivind Ystrom 6, 7 , Christine Dalgård 8 , Axel Skytthe 9 , Gonneke Willemsen 10
Affiliation  

Much progress has been made in twin research since our last special issue on twin registries (Hur, Y.-M., & Craig, J. M. (2013). Twin Research and Human Genetics, 16, 1–12.). This special issue provides an update on the state of twin family registries around the world. This issue includes 61 papers on twin family registries from 25 countries, of which 3 describe consortia based on collaborations of several twin family registries. The articles included in this issue discuss the establishment and maintenance of twin registries, recruitment strategies, methods of zygosity assessment, research aims and major findings from twin family cohorts, as well as other important topics related to twin studies. The papers amount to approximately 1.3 million monozygotic, dizygotic twins and higher order multiples and their family members who participate in twin studies around the world. Nine new twin family registries have been established across the world since our last issue, which demonstrates that twin registers are increasingly important in studies of the determinants and correlates of complex traits from disease susceptibility to healthy development.

中文翻译:

全球双胞胎家族登记处:科学研究的重要资源

自从我们上一期关于双胞胎登记的特刊以来,双胞胎研究已经取得了很大进展(Hur, Y.-M., & Craig, JM (2013). Twin Research and Human Genetics, 16, 1–12.)。本期特刊提供了世界各地双胞胎家庭登记状况的最新信息。本期收录了来自 25 个国家的 61 篇关于双胞胎家族登记的论文,其中 3 篇描述了基于多个双胞胎家族登记处合作的联盟。本期收录的文章讨论了双胞胎登记的建立和维护、招募策略、合子评估方法、双胞胎家庭队列的研究目标和主要发现,以及与双胞胎研究相关的其他重要主题。这些论文涉及世界各地参与双胞胎研究的约 130 万同卵双胞胎、异卵双胞胎和高阶多胞胎及其家庭成员。自上一期以来,世界各地已建立了九个新的双胞胎家庭登记处,这表明双胞胎登记处在研究从疾病易感性到健康发育的复杂特征的决定因素和相关性方面变得越来越重要。
更新日期:2020-01-15
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