OBJECTIVES To evaluate the benefits of a primary progressive aphasia (PPA) education and support session for people with PPA (pwPPA) and their caregivers. METHOD Thirty-eight individuals (20 pwPPA, 18 caregivers) were invited to participate in the study. Twenty-five individuals (12 pwPPA, 13 caregivers) completed questionnaires before and after an education and support group session provided by a speech pathologist and a clinical psychologist. Seven individuals (2 pwPPA, 5 caregivers) participated in follow-up interviews. RESULTS After one attendance, caregivers reported significant improvement in knowledge of PPA, strategies to manage worry and low mood, and opportunities to meet peers. Themes at interview were reduced feelings of isolation, increased feelings of support, increased knowledge of coping strategies, and improved understanding of PPA. Caregivers who had attended previous sessions reported increased feelings of well-being and support. IMPLICATIONS Primary progressive aphasia education and support group sessions in the postdiagnostic period constitute a valuable component of comprehensive care for PPA.

中文翻译：

---

初级渐进性失语症教育和支持小组：临床评估。


目的 评估原发性进行性失语症 (PPA) 教育和支持课程对 PPA 患者 (pwPPA) 及其护理人员的益处。方法 38 名个人（20 名 pwPPA，18 名护理人员）被邀请参加该研究。 25 人（12 名 pwPPA，13 名护理人员）在语言病理学家和临床心理学家提供的教育和支持小组会议之前和之后完成了调查问卷。七人（2 名 pwPPA，5 名护理人员）参加了后续访谈。结果 一次参加后，护理人员报告说，他们在 PPA 知识、管理忧虑和情绪低落的策略以及与同伴见面的机会方面有了显着提高。访谈的主题是减少孤立感、增加支持感、增加应对策略的知识以及提高对 PPA 的理解。参加过之前课程的护理人员报告说，他们的幸福感和支持感有所增加。意义 诊断后阶段的原发性进行性失语症教育和支持小组会议构成了 PPA 综合护理的重要组成部分。