OBJECTIVE Caregivers for individuals with Parkinson's disease (PD) can experience high burden, which underlies the importance of examining the needs of caregivers to be able to support them in the caregiving role. The current study aims to assess the relationships among PD symptoms and four measures of caregiver quality of life (QOL; i.e., personal and social activities, anxiety and depression, self-care, and strain). METHOD Data from 181 caregiver/care recipient dyads (N = 362) were collected at a multidisciplinary PD clinic in a public, academic medical center in the southeastern United States at the time of the care recipient's first neuropsychological evaluation. RESULTS All PD symptoms were positively correlated with each other, as were all forms of caregiver QOL, and all PD symptoms were associated with each measure of caregiver QOL. A series of regressions suggested that demographics and PD symptoms predicted all four types of caregiver QOL, explaining 33% of the variance in caregiver personal and social activities, 24% in anxiety and depression, 28% in self-care, and 36% in strain. Female caregivers and those who provided care to male care recipients generally had worse QOL. Greater PD-related symptoms including difficulties with mobility, decreased emotional well-being, and greater nonmotor functioning impairment were unique predictors of reduced caregiver QOL. CONCLUSIONS PD symptoms are robustly related to caregiver QOL, with mobility and nonmotor symptoms as the primary drivers of this relationship. Interventions for PD caregivers should include strategies for managing mobility and nonmotor symptoms, as well as their QOL effects on caregivers. (PsycINFO Database Record (c) 2020 APA, all rights reserved).

中文翻译：

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帕金森病症状与看护者生活质量的关系。

目标 帕金森病 (PD) 患者的护理人员可能会承受高负担，这说明了检查护理人员的需求以支持他们担任护理角色的重要性。目前的研究旨在评估 PD 症状与照顾者生活质量（QOL；即个人和社交活动、焦虑和抑郁、自我照顾和紧张）的四种衡量标准之间的关系。方法 在美国东南部公共学术医疗中心的多学科 PD 诊所收集了 181 位看护者/被看护者二人组（N = 362）的数据，这些数据是在被看护者进行第一次神经心理学评估时收集的。结果 所有 PD 症状都相互正相关，所有形式的看护者 QOL 也是如此，并且所有 PD 症状都与每个看护者 QOL 的测量相关。一系列回归表明，人口统计学和 PD 症状预测了所有四种类型的看护者 QOL，解释了看护者个人和社交活动中 33%、焦虑和抑郁中 24%、自我护理中 28% 和压力中 36% 的差异. 女性照顾者和为男性照顾者提供照顾的人的生活质量普遍较差。更严重的 PD 相关症状，包括行动不便、情绪健康下降和更大的非运动功能障碍，是看护者 QOL 降低的独特预测因素。结论 PD 症状与照料者 QOL 密切相关，活动性和非运动症状是这种关系的主要驱动因素。对 PD 护理人员的干预措施应包括管理移动和非运动症状的策略，以及它们对护理人员的 QOL 影响。