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Burden Faced by Caregivers of Stroke Patients Who Attend Rural-based Medical Teaching Hospital in Western India.
Annals of Indian Academy of Neurology ( IF 1.7 ) Pub Date : 2020-02-15 , DOI: 10.4103/aian.aian_406_18
Bhavin Mandowara 1 , Alpa N Patel 1 , Amee A Amin 2 , Ajay Phatak 3 , Soaham Desai 4
Affiliation  

BACKGROUND Stroke results in significant caregiver burden and strain. OBJECTIVE The main objectives of this study is to assess the burden and its consequences in caregivers of stroke patients and to determine the associated factors to caregivers' burden. METHODS A cross-sectional study was conducted over 1 year on 70 consecutive patients who attended the Shree Krishna Hospital, Karamsad stroke clinic. Demographic and clinical characteristics of all patients were recorded after obtaining the consent. The modified rankin scale and Barthel index were administered to the patient, whereas Caregiver strain index, Caregiver burden scale, Patient Health Questionnaire-9, Generalized Anxiety Disorder-7, and Kuppuswami scale were administered to the patient's caregiver. Descriptive statistics were used to portray demographic and clinical profiles. Correlation coefficients were used to assess the association between different scales, and t-test was applied to assess association of caregivers' burden with different categorical variables. RESULTS The mean age was 60 years for patients and 47 years for caregivers. Nearly 72.8% of patients were male, whereas 57% of caregivers were female. The mean caregiver burden scale score was 28.26. Caregivers' burden decreased with increase in stroke duration (P = 0.01), increase in education level (P = 0.054), and upper socioeconomic status (P = 0.02). Caregivers' burden increased with caring for male gender (P = 0.18), being a female caregiver (P = 0.31), longer caregiver hours (r = 0.51), and increased patient disability (P < 0.01). A strong correlation existed between caregivers' burden and depression (0.72); anxiety and depression (0.84); caregivers' burden and caregiver strain index (0.72). CONCLUSIONS A structured and targeted caregiver intervention is urgently needed to relieve caregivers' burden and related psychological comorbidities in an Indian setup.

中文翻译:

印度西部农村医学教学医院的中风患者护理人员面临的负担。

背景技术中风导致严重的照顾者负担和压力。目的 本研究的主要目的是评估脑卒中患者照顾者的负担及其后果,并确定照顾者负担的相关因素。方法 对在 Karamsad 中风诊所 Shree Krishna 医院就诊的 70 名连续患者进行了为期 1 年的横断面研究。在获得同意后记录所有患者的人口统计学和临床​​特征。对患者进行了改良的 rankin 量表和 Barthel 指数,而对患者的照顾者进行了护理人员压力指数、护理人员负担量表、患者健康问卷 9、广泛性焦虑症 7 和 Kuppuswami 量表。描述性统计用于描述人口统计和临床概况。相关系数用于评估不同量表之间的关联,并应用 t 检验评估照顾者负担与不同分类变量的关联。结果 患者的平均年龄为 60 岁,护理人员的平均年龄为 47 岁。近 72.8% 的患者为男性,而 57% 的护理人员为女性。照顾者负担量表的平均得分为 28.26。照顾者的负担随着中风持续时间的增加(P = 0.01)、教育水平的增加(P = 0.054)和社会经济地位的提高(P = 0.02)而减少。照顾者的负担随着照顾男性(P = 0.18)、女性照顾者(P = 0.31)、照顾者时间延长(r = 0.51)和患者残疾增加(P < 0.01)而增加。看护者的负担与抑郁之间存在很强的相关性(0.72);焦虑和抑郁(0.84);照顾者的负担和照顾者压力指数(0.72)。结论 迫切需要一种结构化和有针对性的照顾者干预措施,以减轻印度环境中照顾者的负担和相关的心理合并症。
更新日期:2020-02-05
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