PURPOSE Several validated outcome measures, among them the Zarit Burden Interview (ZBI), are valid for measuring caregiver burden in advanced cancer and dementia. However, they have not been validated for a wider palliative care (PC) setting with non-cancer disease. The purpose was to validate ZBI-1 (ultra-short version and proxy rating) and ZBI-7 short versions for PC. METHODS In a prospective, cross-sectional study with informal caregivers of patients in inpatient (PC unit, hospital palliative support team) and outpatient (home care team) PC settings of a large university hospital, content validity and acceptability of the ZBI and its structural validity (via confirmatory factor analysis (CFA) and Rasch analysis) were tested. Reliability assessment used internal consistency and inter-rater reliability and construct validity used known-group comparisons and a priori hypotheses on correlations with Brief Symptom Inventory, Short Form-12, and Distress Thermometer. RESULTS Eighty-four participants (63.1% women; mean age 59.8, SD 14.4) were included. Structural validity assessment confirmed the unidimensional structure of ZBI-7 both in CFA and Rasch analysis. The item on overall burden was the best item for the ultra-short version ZBI-1. Higher burden was recorded for women and those with poorer physical health. Internal consistency was good (Cronbach's α = 0.83). Inter-rater reliability was moderate as proxy ratings estimated caregivers' burden higher than self-ratings (average measures ICC = 0.51; CI = 0.23-.69; p = 0.001). CONCLUSION The ZBI-7 is a valid instrument for measuring caregiver burden in PC. The ultra-short ZBI-1 can be used as a quick and proxy assessment, with the caveat of overestimating burden.

中文翻译：

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在姑息治疗环境中验证两个简短版本的扎里特负担访谈：评估非正式护理人员负担的调查问卷。


目的 一些经过验证的结果测量，其中包括 Zarit Burden Interview (ZBI)，对于衡量晚期癌症和痴呆症的护理人员负担是有效的。然而，它们尚未在更广泛的非癌症疾病姑息治疗 (PC) 环境中得到验证。目的是验证适用于 PC 的 ZBI-1（超短版本和代理评级）和 ZBI-7 短版本。方法 在一项前瞻性、横断面研究中，对大型大学医院的住院患者（PC 部门、医院姑息支持团队）和门诊患者（家庭护理团队）PC 环境中患者的非正式护理人员进行了一项前瞻性横断面研究，研究了 ZBI 的内容有效性和可接受性及其结构。有效性（通过验证性因素分析 (CFA) 和 Rasch 分析）进行了测试。可靠性评估使用内部一致性和评估者间可靠性，并使用已知组比较和关于与简短症状清单、简短表格 12 和应激温度计相关性的先验假设来构建有效性。结果 共有 84 名参与者（63.1% 为女性；平均年龄 59.8 岁，标准差 14.4）。结构有效性评估在 CFA 和 Rasch 分析中证实了 ZBI-7 的一维结构。整体负担的项目是超短版ZBI-1的最佳项目。女性和身体健康状况较差的人的负担更高。内部一致性良好（Cronbach's α = 0.83）。评估者间的可靠性为中等，因为代理评级估计护理人员的负担高于自我评级（平均测量 ICC = 0.51；CI = 0.23-.69；p = 0.001）。结论 ZBI-7 是测量 PC 中护理人员负担的有效工具。超短 ZBI-1 可用作快速代理评估，但需要注意高估负担。