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Key recommendations for high-quality female oncofertility care based on international clinical practice guidelines.
Reproductive BioMedicine Online ( IF 3.7 ) Pub Date : 2019-12-04 , DOI: 10.1016/j.rbmo.2019.11.016
Özlem Baysal 1 , Michelle Van den Berg 1 , Floor Beldman 1 , Didi D M Braat 1 , Willianne L D M Nelen 1 , Rosella P M G Hermens 2 , Catharina C M Beerendonk 1
Affiliation  

RESEARCH QUESTION Which guideline-based key recommendations can be selected for high-quality female oncofertility care? DESIGN The Delphi method was used to select a set of key recommendations for female oncofertility care. First, recommendations from (inter)national clinical practice guidelines were selected in four domains: risk communication, referral, counselling and decision-making. Thereafter, they were scored, per domain, on their importance for high-quality oncofertility care by a multidisciplinary, oncofertility expert panel, consisting of patients, referrers and counsellors, in two Delphi rounds. Finally, the selected key recommendations were presented for approval in a third round. Differences in perspectives between subgroups of the expert panel were analysed. RESULTS A panel of 86 experts was asked to select key recommendations for high-quality oncofertility care. Eleven key recommendations were selected. Key recommendations in the domains risk communication and referral focused on information provision and offering referral to a reproductive specialist to female cancer patients. With the counselling domain, key recommendations focused on all aspects of counselling, including different methods, safety, pros and cons. In the decision-making domain, key recommendations focused on shared decision-making and supporting the decision with written information. The final set of key recommendations was approved by 91% of the experts. Differences in perspectives were found between subgroups. Patients found recommendations on decision-making and information provision more important. CONCLUSION A set of 11 key recommendations for high-quality female oncofertility care was selected by a multidisciplinary expert panel. The involvement of the perspectives of patients, referrers and counsellors led to this valid, acceptable and credible set of key recommendations.

中文翻译:

基于国际临床实践指南的高质量女性肿瘤治疗关键建议。

研究问题对于高质量的女性生育力护理,可以选择哪些基于指南的关键建议?设计采用德尔菲法(Delphi method)为女性生育力护理选择了一组关键建议。首先,从(国际)国家临床实践指南的建议中选择了四个领域:风险交流,转诊,咨询和决策。此后,在两个德尔菲回合中,由患者,推荐人和顾问组成的多学科,不育症专家小组针对每个领域对他们对高质量的不孕症护理的重要性进行了评分。最后,选定的关键建议已提交第三轮批准。分析了专家小组各小组之间的观点差异。结果邀请了86位专家组成的小组,为高质量的生育力护理选择关键建议。选择了11项关键建议。该领域的主要建议涉及风险交流和转诊,重点是提供信息并向女性癌症患者转诊生殖专家。在咨询领域,主要建议集中于咨询的各个方面,包括不同的方法,安全性,利弊。在决策领域,主要建议集中于共享决策并以书面信息支持决策。最后一组关键建议获得了91%的专家的认可。在亚组之间发现了观点差异。患者发现有关决策和信息提供的建议更为重要。结论一个多学科专家小组选择了一套关于高质量女性肿瘤治疗的11条主要建议。患者,推荐人和顾问的观点的参与导致了这一有效,可接受和可信的关键建议集。
更新日期:2020-03-30
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