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Establishment of a Patient-Centered Outcomes Research Network for Individuals with TBI and Neuropsychiatric Symptoms.
Brain Injury ( IF 1.5 ) Pub Date : 2020-02-12 , DOI: 10.1080/02699052.2020.1725980
Vani A Rao 1 , Kathleen T Bechtold 2 , David B Arciniegas 3 , Quincy M Samus 1 , Jennifer Albrecht 4 , Bryan T Pugh 5 , Aaron Jacoby 6 , Luis Buenaver 1
Affiliation  

Aims: The overarching goal of this project was to establish a group comprised of a variety of TBI stakeholders for the purpose of: (1) determining facilitators and barriers in management of neuropsychiatric symptoms after TBI; (2) identifying strategies for maintaining a TBI PCOR network; (3) enumerating research topics related to TBI neuropsychiatry; and (4) highlighting policy changes related to TBI neuropsychiatry.Methods: Twenty-nine TBI stakeholders participated in focus group discussions. Qualitative analyses were conducted both manually and using Dedoose software.Results: Participant-identified barriers included stigma associated with experiencing neuropsychiatric symptoms and poor insurance coverage. Facilitators included treatment focused on education of neuropsychiatric symptoms after TBI and having a comprehensive caregiver plan. Best strategies for maintaining TBI PCOR network included having a well-defined project, continued regular meetings, and on-going education of network members. Pertinent research topics included TBI and aging, factors influencing outcomes after TBI, substance use disorders related to TBI, and effectiveness of telemental health services. Needed policy changes included making TBI neuropsychiatry education accessible to stakeholders and improving accessibility of TBI neuropsychiatric care.Conclusion: TBI stakeholders identified several facilitators of care for neuropsychiatric symptoms after TBI and suggested research topics and best practices for conducting PCOR in this area.

中文翻译:

为患有 TBI 和神经精神症状的个体建立以患者为中心的结果研究网络。

目的:该项目的总体目标是建立一个由各种 TBI 利益相关者组成的小组,目的是:(1)确定 TBI 后神经精神症状管理的促进因素和障碍;(2) 确定维护 TBI PCOR 网络的策略;(3) 列举与TBI神经精神病学相关的研究课题;(4) 强调与 TBI 神经精神病学相关的政策变化。方法:29 名 TBI 利益相关者参加了焦点小组讨论。定性分析通过手动和使用 Dedoose 软件进行。结果:参与者识别的障碍包括与经历神经精神症状相关的耻辱感和较差的保险范围。促进者包括专注于 TBI 后神经精神症状教育的治疗,并制定全面的护理人员计划。维护 TBI PCOR 网络的最佳策略包括定义明确的项目、持续的定期会议以及对网络成员的持续教育。相关研究主题包括 TBI 和衰老、影响 TBI 后结果的因素、与 TBI 相关的物质使用障碍以及远程心理健康服务的有效性。所需的政策变化包括让利益相关者可以接受 TBI 神经精神病学教育,并提高 TBI 神经精神护理的可及性。结论:TBI 利益相关者确定了 TBI 后神经精神症状护理的几个促进者,并提出了在该领域进行 PCOR 的研究主题和最佳实践。相关研究主题包括 TBI 和衰老、影响 TBI 后结果的因素、与 TBI 相关的物质使用障碍以及远程心理健康服务的有效性。所需的政策变化包括让利益相关者可以接受 TBI 神经精神病学教育,并提高 TBI 神经精神护理的可及性。结论:TBI 利益相关者确定了 TBI 后神经精神症状护理的几个促进者,并提出了在该领域进行 PCOR 的研究主题和最佳实践。相关研究主题包括 TBI 和衰老、影响 TBI 后结果的因素、与 TBI 相关的物质使用障碍以及远程心理健康服务的有效性。需要的政策变化包括让利益相关者可以接受 TBI 神经精神病学教育和提高 TBI 神经精神护理的可及性。结论:TBI 利益相关者确定了 TBI 后神经精神症状护理的几个促进者,并提出了在该领域进行 PCOR 的研究主题和最佳实践。
更新日期:2020-02-12
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