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Group based video-conferencing for adults with depression: findings from a user-led qualitative data analysis using participatory theme elicitation.
Research Involvement and Engagement Pub Date : 2019-12-05 , DOI: 10.1186/s40900-019-0173-z
Paul Best 1, 2, 3 , Tracey McConnell 1, 3 , Gavin Davidson 1, 3 , Jennifer Badham 2 , Ruth D Neill 1, 3
Affiliation  

Background Accessing support services for depression has been historically difficult given the societal stigma that exists regarding the condition. Recent advances in digital technologies continue to be postulated as a potential panacea yet the results from research trials have been mixed with a range of effect sizes. Methods This article offers a different perspective by presenting a panel of end users (co-researchers) with qualitative interview data (n = 8) taken from a feasibility RCT of a group based video-conferencing service for depressed adults. The co-researcher panel were introduced to a new method of participatory data analysis known as Participatory Theme Elicitation (PTE). This method involves using network analysis techniques to create groupings and visual diagrams in order to support the generation of themes and minimise scientific researcher input/influence. Results Co-researchers reported that while VC based interventions appeared convenient, accessible and relatively low cost - additional training and support should be offered to improve uptake and retention. In addition, co-researchers suggested that further exploration is needed regarding the level of self-awareness one feels in a group based VC environment and whether this facilitates disclosure (through disinhibition) or increases anxiety. Conclusion The findings presented here appear to support existing (researcher and academic-led) literature in the field as well as suggest new areas for investigation. By presenting data generated solely by co-researchers, this article also adds to the evidence surrounding participatory analysis methods - particularly the growing need for robust approaches that are accessible and less time-consuming than those currently available. Trial registration number NCT03288506 (Clinicaltrials.gov) 20th Sept 2017 https://clinicaltrials.gov/ct2/show/NCT03288506.

中文翻译:

针对抑郁症成人的基于小组的视频会议:使用参与式主题启发的用户主导的定性数据分析的结果。

背景 鉴于抑郁症存在的社会耻辱,获得抑郁症支持服务在历史上一直很困难。数字技术的最新进展继续被认为是一种潜在的灵丹妙药,但研究试验的结果与一系列效应大小混合在一起。方法 本文通过向一组最终用户(共同研究人员)展示定性访谈数据(n = 8)来提供不同的视角,这些数据取自针对抑郁成人的基于小组的视频会议服务的可行性 RCT。共同研究小组被介绍了一种新的参与式数据分析方法,称为参与式主题启发 (PTE)。该方法涉及使用网络分析技术来创建分组和可视化图表,以支持主题的生成并最大限度地减少科学研究人员的输入/影响。结果 共同研究人员报告说,虽然基于 VC 的干预措施看起来方便、可及且成本相对较低,但应提供额外的培训和支持以提高吸收和保留。此外,共同研究人员建议,需要进一步探索人们在基于团队的风险投资环境中感受到的自我意识水平,以及这是否有助于披露(通过解除抑制)或增加焦虑。结论 这里提出的研究结果似乎支持该领域现有的(研究人员和学术主导的)文献,并提出了新的研究领域。通过展示仅由共同研究人员生成的数据,本文还增加了围绕参与式分析方法的证据——尤其是对与目前可用的方法相比更易于访问且耗时更少的稳健方法的需求日益增长。试验注册号 NCT03288506 (Clinicaltrials.gov) 2017 年 9 月 20 日 https://clinicaltrials.gov/ct2/show/NCT03288506。
更新日期:2020-04-22
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