PURPOSE Collection and analysis of health data are crucial to achieving high-quality clinical care, research, and quality improvement. This review explores existing hospital, regional, provincial and national data platforms in Canada to identify gaps and barriers, and recommend improvements for data science. SOURCE The Canadian Critical Care Trials Group and the Canadian Critical Care Translational Biology Group undertook an environmental survey using list-identified names and keywords in PubMed and the grey literature, from the Canadian context. Findings were grouped into sections, corresponding to geography, purpose, and patient sub-group initiatives, using a narrative qualitative approach. Emerging themes, impressions, and recommendations towards improving data initiatives were generated. PRINCIPAL FINDINGS In Canada, the Canadian Institute for Health Information Discharge Abstract Database contains high-level clinical data on every adult and child discharged from acute care facilities; however, it does not contain data from Quebec, critical care-specific severity of illness risk-adjustment scores, physiologic data, or data pertaining to medication use. Provincially mandated critical care platforms in four provinces contain more granular data, and can be used to risk adjust and link to within-province data sets; however, no inter-provincial collaborative mechanism exists. There is very limited infrastructure to collect and link biological samples from critically ill patients nationally. Comprehensive international clinical data sets may inform future Canadian initiatives. CONCLUSION Clinical and biological data collection among critically ill patients in Canada is not sufficiently coordinated, and lags behind other jurisdictions. An integrated and inclusive critical care data platform is a key clinical and scientific priority in Canada.

中文翻译：

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支持加拿大重症监护研究和质量改进的数据举措：环境扫描和叙述审查。


目的 健康数据的收集和分析对于实现高质量的临床护理、研究和质量改进至关重要。本次审查探讨了加拿大现有的医院、地区、省和国家数据平台，以确定差距和障碍，并提出数据科学的改进建议。资料来源：加拿大重症监护试验小组和加拿大重症监护转化生物学小组利用 PubMed 中列出的名称和关键词以及加拿大背景下的灰色文献进行了环境调查。使用叙述性定性方法，将调查结果分为与地理、目的和患者亚组倡议相对应的部分。产生了新的主题、印象和改进数据计划的建议。主要发现 在加拿大，加拿大健康信息研究所出院摘要数据库包含每个从急症护理机构出院的成人和儿童的高级临床数据；然而，它不包含来自魁北克省的数据、特定于重症监护的疾病严重程度风险调整评分、生理数据或与药物使用有关的数据。四个省省级授权的重症监护平台包含更精细的数据，可用于风险调整和链接到省内数据集；然而，不存在省际协作机制。全国范围内用于收集和链接危重患者生物样本的基础设施非常有限。全面的国际临床数据集可以为加拿大未来的举措提供信息。结论 加拿大危重患者的临床和生物学数据收集工作协调不充分，落后于其他司法管辖区。 综合性、包容性的重症监护数据平台是加拿大临床和科学的一个关键优先事项。