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Outpatient and community care for preventing pressure injuries in spinal cord injury. A qualitative study of service users' and providers' experience.
Spinal Cord ( IF 2.1 ) Pub Date : 2020-02-26 , DOI: 10.1038/s41393-020-0444-4
Claudia Zanini 1, 2 , Nadia Lustenberger 1 , Stefan Essig 2, 3 , Armin Gemperli 1, 2 , Mirjam Brach 1, 2 , Gerold Stucki 1, 2 , Sara Rubinelli 1, 2 , Anke Scheel-Sailer 2, 4
Affiliation  

STUDY DESIGN Qualitative exploratory study. OBJECTIVES Pressure injuries (PIs) are a major secondary condition occurring after spinal cord injuries (SCI). Optimization of outpatient and community care may be a promising approach to better support community-dwelling individuals with SCI in preventing PIs. The aim of this study was to examine the experiences of individuals with SCI, family caregivers and health professionals (HPs) in using or providing outpatient and community services for early treatment and prevention of PIs in SCI. SETTING Switzerland. METHODS Semi-structured interviews with a sample of Swiss residents community-dwelling individuals with SCI (n = 20), family caregivers (n = 5) and HPs (n = 22) were analysed using thematic analysis. RESULTS General practitioners (GPs), home care providers, SCI-specialized outpatient clinics and an SCI-specialized nursing service are involved in the prevention and early treatment of PIs. Our findings show that the needs of individuals with SCI are not fully met: outpatient and community care is often fragmented, mono-professional and non-specialized, while persons with SCI and HPs prefer coordinated, inter-professional and specialized services for preventing and treating PIs. Our findings also highlight the challenges faced by HPs in providing care to individuals with SCI in the community. CONCLUSIONS Although there seems to be a gap in service provision, there is the potential for improvement by better integrating the different providers in a network and structuring their collaborations. Concrete suggestions are: systematizing knowledge transfer to home care providers and GPs; redefining the role of involved HPs and individuals with SCI and reinforcing the role of the SCI-specialized nursing service.

中文翻译:

门诊和社区护理可防止脊髓损伤中的压力损伤。对服务用户和提供者的体验进行定性研究。

研究设计定性探索性研究。目的压力损伤(PI)是脊髓损伤(SCI)后发生的主要继发性疾病。优化门诊和社区护理可能是一种有前途的方法,可以更好地支持SCI社区居民预防PI。这项研究的目的是检验SCI患者,家庭护理人员和卫生专业人员(HP)在使用或提供门诊和社区服务以早期治疗和预防SCI PI方面的经验。设置瑞士。方法采用主题分析方法,对样本为SCI(n = 20),家庭护理人员(n = 5)和HP(n = 22)的瑞士居民社区居民进行半结构式访谈。结果全科医生(GPs),家庭护理提供者,SCI专业的门诊诊所和SCI专业的护理服务都参与了PI的预防和早期治疗。我们的研究结果表明,患有SCI的人的需求不能得到完全满足:门诊和社区护理通常是零散的,单一专业的和非专业的,而SCI和HP的人则更喜欢预防,治疗方面的协调,专业间和专业化服务效绩指标。我们的发现还凸显了HP在为社区SCI患者提供护理方面面临的挑战。结论尽管服务提供方面似乎存在差距,但仍有可能通过更好地将不同提供商集成到网络中并构建其协作来进行改进。具体建议是:系统化向家庭护理提供者和全科医生的知识转移;
更新日期:2020-02-26
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