PURPOSE To examine effects of a virtual mind-body group for adolescents with neurofibromatoses (NF1 and NF2; Resilient Youth with Neurofibromatosis; RY-NF) on multiple resiliency factors against a health education attention control (Health Education for Youth with Neurofibromatosis; HE-NF) using data from a randomized controlled trial. Specifically, our research question was whether adolescents randomized to the RY-NF (versus the HE-NF) would have greater improvements in resiliency factors at post-intervention and whether these gains would be maintained at 6-month follow-up. METHODS Adolescents with NF (n = 51; M age 12-17) were randomly assigned to RY-NF (n = 27) or HE-NF (n = 24). Resiliency factors (mindfulness, coping, gratitude, optimism, and social support) were collected at baseline, post-intervention (88%), and 6-month follow-up (82%). RESULTS Participation in the RY-NF was associated with greater pre-to-post improvements in gratitude (Mdifference = 4.38; 95% CI-0.52-8.23; p = .027) and mindfulness (Mdifference= 9.41; 95% CI 4.40-14.42.; p < .001) compared to HE-NF; improvements sustained at 6 months. There were no group differences on any additional resiliency factors. However, participation in the RY-NF was associated with pre-to-post- improvements in coping (Mdifference= 9.16; 95% CI 2.93-15.39; p = .005), and social support (Mdifference= 6.79; 95% CI 1.96-11.63; p = .007); improvements sustained at 6 months. CONCLUSIONS Participation in the RY-NF resulted in sustained improvement in several resiliency factors. Promoting resiliency may help adolescents successfully navigate challenges associated with NF.

中文翻译：

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参加虚拟身心小组计划的神经纤维瘤病青少年的适应力因素改善。

目的探讨虚拟身心团体对青少年神经纤维瘤病（NF1和NF2；弹性青少年神经纤维瘤病； RY-NF）对多种弹性因子的抵抗作用，以对抗健康教育注意力控制（青少年神经纤维瘤健康教育； HE-NF） ）使用来自随机对照试验的数据。具体来说，我们的研究问题是，干预后，随机分配给RY-NF的青少年（相对于HE-NF）是否会在弹性因子方面有更大的改善，以及这些收益是否会在6个月的随访中得以维持。方法NF（n = 51； M年龄12-17）的青少年被随机分配到RY-NF（n = 27）或HE-NF（n = 24）。在基线，干预后（88％）和6个月的随访（82％）中收集了恢复力因素（正念，应对，感激，乐观和社会支持）。结果RY-NF的参与与感恩前（Mdifference = 4.38; 95％CI-0.52-8.23; p = .027）和正念（Mdifference = 9.41; 95％CI 4.40-14.42）的事前改善有关。 。; p <.001）与HE-NF相比；改善持续了6个月。在任何其他弹性因素上均没有群体差异。然而，参与RY-NF与应对前后的改善有关（Mdifference = 9.16； 95％CI 2.93-15.39； p = .005）和社会支持（Mdifference = 6.79； 95％CI 1.96） -11.63; p = .007）；改善持续了6个月。结论参与RY-NF导致一些弹性因子的持续改善。增强适应力可以帮助青少年成功应对与NF相关的挑战。