Genomic data sharing is becoming more important as scientists join forces across borders in biomedical research for the benefit of patients and society. The EU's General Data Protection Regulation (GDPR) helps simplify sharing of such data at the European and international level. However, initial optimism has dried up as EU member states go their own ways in implementing the GDPR into national laws, and as legal cases challenging data sharing reach courts. Codes of conduct could facilitate data sharing in Europe and better connect it to global health research. This commentary explains the potential of codes of conduct for addressees and drafters. Codes are no panacea though; other measures may be necessary to ensure that Europe remains collaborative and competitive in biomedical research. Nevertheless, codes of conduct would bring immediate benefits and, in the long term, could foster a true European ecosystem for joint biomedical research and easier international data sharing.

中文翻译：

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欧洲的基因组数据共享正陷入困境——行为准则能否阻止其衰落？


随着科学家跨国界联合起来进行生物医学研究，造福患者和社会，基因组数据共享变得越来越重要。欧盟的《通用数据保护条例》(GDPR) 有助于简化欧洲和国际层面的此类数据共享。然而，随着欧盟成员国按照自己的方式将 GDPR 纳入国家法律，以及挑战数据共享的法律案件提交法院，最初的乐观情绪已经枯竭。行为准则可以促进欧洲的数据共享，并更好地将其与全球健康研究联系起来。本评论解释了行为准则对于收件人和起草者的潜力。然而，代码并不是万能的。可能需要采取其他措施来确保欧洲在生物医学研究方面保持合作和竞争力。尽管如此，行为准则将带来立竿见影的好处，从长远来看，可以为联合生物医学研究和更容易的国际数据共享培育真正的欧洲生态系统。