当前位置: X-MOL 学术BMC Nephrol. › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Supporting quality care for ESRD patients: the social worker can help address barriers to advance care planning.
BMC Nephrology ( IF 2.3 ) Pub Date : 2020-02-19 , DOI: 10.1186/s12882-020-01720-0
Charles R Senteio 1 , Mary Beth Callahan 2
Affiliation  

BACKGROUND Advance Care Planning (ACP) is essential for preparation for end-of-life. It is a means through which patients clarify their treatment wishes. ACP is a patient-centered, dynamic process involving patients, their families, and caregivers. It is designed to 1) clarify goals of care, 2) increase patient agency over their care and treatments, and 3) help prepare for death. ACP is an active process; the end-stage renal disease (ESRD) illness trajectory creates health circumstances that necessitate that caregivers assess and nurture patient readiness for ACP discussions. Effective ACP enhances patient engagement and quality of life resulting in better quality of care. MAIN BODY Despite these benefits, ACP is not consistently completed. Clinical, technical, and social barriers result in key challenges to quality care. First, ACP requires caregivers to have end-of-life conversations that they lack the training to perform and often find difficult. Second, electronic health record (EHR) tools do not enable the efficient exchange of requisite psychosocial information such as treatment burden, patient preferences, health beliefs, priorities, and understanding of prognosis. This results in a lack of information available to enable patients and their families to understand the impact of illness and treatment options. Third, culture plays a vital role in end-of-life conversations. Social barriers include circumstances when a patient's cultural beliefs or value system conflicts with the caregiver's beliefs. Caregivers describe this disconnect as a key barrier to ACP. Consistent ACP is integral to quality patient-centered care and social workers' training and clinical roles uniquely position them to support ACP. CONCLUSION In this debate, we detail the known barriers to completing ACP for ESRD patients, and we describe its benefits. We detail how social workers, in particular, can support health outcomes by promoting the health information exchange that occurs during these sensitive conversations with patients, their family, and care team members. We aim to inform clinical social workers of this opportunity to enhance quality care by engaging in ACP. We describe research to help further elucidate barriers, and how researchers and caregivers can design and deliver interventions that support ACP to address this persistent challenge to quality end-of-life care.

中文翻译:

支持ESRD患者的优质护理:社工可以帮助解决障碍,以推进护理计划。

背景技术提前护理计划(ACP)对于生命周期的准备至关重要。这是患者明确其治疗愿望的一种方式。ACP是一个以患者为中心的动态过程,涉及患者,他们的家人和护理人员。它旨在1)明确护理目标,2)增加患者对他们的护理和治疗的能力,以及3)帮助死亡做准备。ACP是一个积极的过程;终末期肾脏疾病(ESRD)的疾病轨迹会产生健康状况,因此护理人员必须评估和培养患者对ACP讨论的准备程度。有效的ACP可提高患者的参与度和生活质量,从而改善护理质量。主要身体尽管有这些好处,但ACP并非始终如一地完成。临床,技术和社会障碍导致对优质护理的关键挑战。第一,ACP要求看护者进行临终对话,而他们缺乏进行训练的能力,并且常常感到困难。其次,电子健康记录(EHR)工具无法有效交换必要的社会心理信息,例如治疗负担,患者喜好,健康信念,优先顺序和对预后的了解。这导致缺乏可用于使患者及其家人了解疾病和治疗选择的影响的信息。第三,文化在终止生命的对话中起着至关重要的作用。社会障碍包括患者的文化信仰或价值体系与看护者的信仰相抵触的情况。护理人员将这种断开连接描述为ACP的主要障碍。一致的ACP是高质量的以患者为中心的护理和社会工作者的服务不可或缺的组成部分 培训和临床角色的独特定位使他们能够支持ACP。结论在这场辩论中,我们详细介绍了ESRD患者完成ACP的已知障碍,并描述了其好处。我们详细介绍了社会工作者如何通过促进与患者,他们的家人和护理团队成员进行这些敏感对话期间发生的健康信息交换来支持健康结果。我们旨在通过参与ACP来告知临床社会工作者这个机会,以提高医疗质量。我们描述了旨在帮助进一步阐明障碍的研究,以及研究人员和护理人员如何设计和提供支持ACP的干预措施,以解决对优质生命终止护理的持续挑战。我们详细介绍了ESRD患者完成ACP的已知障碍,并描述了其好处。我们详细介绍了社会工作者如何通过促进与患者,他们的家人和护理团队成员进行这些敏感对话期间发生的健康信息交换来支持健康结果。我们旨在通过参与ACP来告知临床社会工作者这个机会,以提高医疗质量。我们描述了旨在帮助进一步阐明障碍的研究,以及研究人员和护理人员如何设计和提供支持ACP的干预措施,以解决对优质生命终止护理的持续挑战。我们详细介绍了ESRD患者完成ACP的已知障碍,并描述了其好处。我们详细介绍了社会工作者如何通过促进与患者,他们的家人和护理团队成员进行这些敏感对话期间发生的健康信息交换来支持健康结果。我们旨在通过参与ACP来告知临床社会工作者这个机会,以提高医疗质量。我们描述了旨在帮助进一步阐明障碍的研究,以及研究人员和护理人员如何设计和提供支持ACP的干预措施,以解决对优质生命终止护理的持续挑战。他们的家人和护理团队成员。我们旨在通过参与ACP来告知临床社会工作者这个机会,以提高医疗质量。我们描述了旨在帮助进一步阐明障碍的研究,以及研究人员和护理人员如何设计和提供支持ACP的干预措施,以解决对优质生命终止护理的持续挑战。他们的家人和护理团队成员。我们旨在通过参与ACP来告知临床社会工作者这个机会,以提高医疗质量。我们描述了旨在帮助进一步阐明障碍的研究,以及研究人员和护理人员如何设计和提供支持ACP的干预措施,以解决对优质生命终止护理的持续挑战。
更新日期:2020-02-19
down
wechat
bug