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Quality of Care Standards in Inflammatory Bowel Diseases: a European Crohn's and Colitis Organisation [ECCO] Position Paper.
Journal of Crohn's and Colitis ( IF 8.3 ) Pub Date : 2020-02-07 , DOI: 10.1093/ecco-jcc/jjaa023
Gionata Fiorino 1, 2 , Theodore Lytras 3 , Lisa Younge 4 , Catarina Fidalgo 5 , Sofie Coenen 6 , Maria Chaparro 7 , Mariangela Allocca 1, 2 , Ian Arnott 8 , Peter Bossuyt 9 , Johan Burisch 10 , Marjo Campmans-Kuijpers 11 , Lissy de Ridder 12 , Axel Dignass 13 , Ciara Drohan 14 , Roger Feakins 15 , Daniela Gilardi 2 , Jan Grosek 16 , Evelyn Groß 14 , Ailsa Hart 17 , Susanna Jäghult 18 , Konstantinos Katsanos 19 , Sanna Lönnfors 14 , Yves Panis 20 , Marko Perovic 14 , Marieke Pierik 21 , Jordi Rimola 22 , Hagit Tulchinsky 23 , Javier P Gisbert 7
Affiliation  

The management of inflammatory bowel disease (IBD) is complex, and requires tight control of disease activity, close monitoring to avoid treatment side effects, healthcare professionals with expertise in IBD and an interdisciplinary, holistic approach. Despite various efforts to standardise structures, processes and outcomes1-8, and due to the high variability at the local, national and international levels, there are still no clear definitions or outcome measures available to establish quality of care standards for IBD patients that are applicable in all contexts and all countries. For this reason, the European Crohn's and Colitis Organisation (ECCO) supported the construction of a list of criteria summarising current standards of care in IBD. The list comprises 111 quality standard points grouped into three main domains (structure n=31, process n=42, outcomes n=38) and is based on scientific evidence, interdisciplinary expert consensus and patient-oriented perspectives. The list of proposed criteria is intended to represent the position of ECCO regarding the optimum quality of care that should be available to patients. Since healthcare systems and regulations vary considerably between countries, this list may require adaptation at local and national levels. It is recognised that not all these criteria that have been identified as optimal will be available in every unit. However, ECCO will continue its efforts to develop and coordinate projects and initiatives that will help to guarantee optimal quality of care for all IBD patients.

中文翻译:

炎症性肠病的护理质量标准:欧洲克罗恩氏和结肠炎组织[ECCO]立场文件。

炎症性肠病(IBD)的管理很复杂,需要严格控制疾病活动,密切监测以避免治疗副作用,具有IBD专业知识和跨学科,整体方法的医疗专业人员。尽管在标准化结构,过程和结果方面做出了各种努力1-8,并且由于地方,国家和国际层面的高度可变性,仍然没有可用的明确定义或结果措施来建立适用于IBD患者的护理质量标准在所有情况下和所有国家/地区。因此,欧洲克罗恩氏和结肠炎组织(ECCO)支持构建标准清单,以总结当前IBD的护理标准。该列表包含111个质量标准点,分为三个主要领域(结构n = 31,过程n = 42,结果n = 38),并且基于科学证据,跨学科专家共识和以患者为导向的观点。建议标准清单旨在代表ECCO在应为患者提供的最佳护理质量方面的立场。由于各国之间的医疗保健系统和法规差异很大,因此该列表可能需要在地方和国家级别进行调整。人们认识到,并非所有被确定为最佳的标准都可以在每个单元中使用。但是,ECCO将继续努力开发和协调项目和计划,以帮助确保为所有IBD患者提供最佳的护理质量。建议标准清单旨在代表ECCO在应为患者提供的最佳护理质量方面的立场。由于各国之间的医疗保健系统和法规差异很大,因此该列表可能需要在地方和国家级别进行调整。人们认识到,并非所有被确定为最佳的标准都可以在每个单元中使用。但是,ECCO将继续努力制定和协调项目和计划,以帮助确保为所有IBD患者提供最佳的护理质量。建议标准清单旨在代表ECCO在应为患者提供的最佳护理质量方面的立场。由于各国之间的医疗保健系统和法规差异很大,因此该列表可能需要在地方和国家级别进行调整。人们认识到,并非所有被确定为最佳的标准都可以在每个单元中使用。但是,ECCO将继续努力开发和协调项目和计划,以帮助确保为所有IBD患者提供最佳的护理质量。人们认识到,并非所有被确定为最佳的标准都可以在每个单元中使用。但是,ECCO将继续努力开发和协调项目和计划,以帮助确保为所有IBD患者提供最佳的护理质量。人们认识到,并非所有被确定为最佳的标准都可以在每个单元中使用。但是,ECCO将继续努力开发和协调项目和计划,以帮助确保为所有IBD患者提供最佳的护理质量。
更新日期:2020-02-14
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