Multiple sclerosis (MS) is a lifelong neurological condition affecting around 2.2 million people worldwide. There are a wide range of symptoms, with fatigue reported as one of the most troublesome. MS Energize—or MS Energise in UK English regions—is an iPhone app focused on self-management of fatigue for people with MS. Based on cognitive-behavioral therapy principles, the app covers MS fatigue, how to use energy effectively, how behavior, thoughts and emotions interact and impact on MS fatigue, as well as the potential effects of bodily and environmental factors. MS Energize provides education, interactive tasks, and supports application of the principles into a user's day-to-day life. We field tested the usability and perceived usefulness of MS Energize with 11 people with longstanding multiple sclerosis in New Zealand and the United Kingdom. Participants used the app over a period of five to six weeks after which they rated the usability of the app and participated in an in-depth qualitative interview. We developed four main themes through our thematic analysis. 1. Validation of participants' own experiences of living with MS fatigue. 2. The personal cost in engaging with such an intervention. 3. Reframing experiences and adding to knowledge. 4. That the app was generally a good idea. Field testers' feedback also identified usability issues that could be addressed. In particular, the amount of text-based content in the app contributed to the app itself being fatiguing. This field-testing process has highlighted the value of the app while also guiding our roadmap for further developments to enhance usability and usefulness. The next step is further refinement of components of MS Energize in preparation for a trial of its clinical and cost effectiveness.

中文翻译：

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MS Energize：针对多发性硬化症患者自我管理疲劳的应用程序的现场试验

多发性硬化症（MS）是一种终生的神经系统疾病，在全世界范围内影响着约220万人。有多种症状，据报告疲劳是最麻烦的症状之一。MS Energize（或在英国英语地区为MS Energize）是一款iPhone应用程序，专注于MS患者的疲劳自我管理。该应用程序基于认知行为疗法的原理，涵盖了MS疲劳，如何有效利用能量，行为，思想和情感如何相互作用以及对MS疲劳的影响以及身体和环境因素的潜在影响。MS Energize提供教育，交互式任务，并支持将这些原理应用到用户的日常生活中。我们在新西兰和英国对11名长期患有多发性硬化症的人进行了MS Energize的可用性和感知有用性的现场测试。参与者在五到六周的时间内使用了该应用程序，然后评估了该应用程序的可用性，并参加了深入的定性访谈。通过主题分析，我们制定了四个主要主题。1.验证参与者自己患有MS疲劳的经历。2.参与此类干预的个人成本。3.重新构造经验并增加知识。4.该应用通常是个好主意。现场测试人员的反馈还确定了可以解决的可用性问题。特别是，应用程序中基于文本的内容的数量导致应用程序本身很疲劳。这个现场测试过程突出了该应用程序的价值，同时还指导了我们进一步开发路线图的过程，以增强可用性和实用性。