The unanticipated diagnosis of sporadic Creutzfeldt-Jakob disease (sCJD) in a patient after previous neurosurgery can lead to difficult decisions regarding informing contacts. A patient developed sCJD 3 years after neurosurgery. There were 29 potential contacts and 26 were contacted. Twelve completed a questionnaire. The majority of patients wished to know about the contact and to be seen face-to-face, and their main concern was developing the disease despite verbal and written reassurance that this was unlikely. Informing patients of sCJD contact is difficult and can lead to significant patient anxiety. Face-to-face meetings, a helpline and follow-up can help.

中文翻译：

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告知患者接触有关医源性克雅氏病的信息。

在先前的神经外科手术后，对患者偶发性Creutzfeldt-Jakob病（sCJD）进行了意外的诊断，可能导致就告知接触者做出困难的决定。一名患者在神经外科手术后三年发展为sCJD。有29位潜在联系人，有26位已联系。十二完成了问卷。大多数患者希望了解这种接触并面对面看到，尽管语言和书面保证不太可能，但他们的主要关注点仍是疾病的发展。告知患者sCJD接触很困难，并且可能导致患者严重焦虑。面对面的会议，热线服务和后续行动都可以提供帮助。