Background

The emotional impact of inflammatory bowel disease (IBD) is well documented. Patients describe distress, anxiety, depression and relationship difficulties, (including with healthcare staff). Nurses working with IBD patients report being emotionally affected, with fears of ‘burnout’, feeling unable to respond helpfully to patients and feelings of guilt, frustration, sadness and anger. Understanding and managing the emotional impact of the work for IBD nurses is an area underrepresented in either research or nursing literature.

Methods

A collaborative project with IBD nurses and nursing and psychotherapy colleagues from the Tavistock and Portman NHS Foundation Trust developed a one-day event for IBD nurses in the UK. Attendees were self-selecting and the event was supported by Pharma. The conference had three aims: To provide an opportunity to recognise and understand the emotional impact on nurses working with IBD patients, to provide a networking opportunity, and to use information gathered before, during and after the conference to develop a clearer understanding of nurses’ experiences and needs. A pre-conference questionnaire was sent to attendees, observations were made during the conference (noting themes and dilemmas) and an evaluation form was provided.

Results

89% agreed/strongly agreed the event provided understanding of how IBD can have an emotional and psychological impact on patients. 89% agreed/strongly agreed the event provided understanding of the emotional impact on nurses working with IBD patients. Eighty-nine per cent agreed/strongly agreed the event provided understanding of ways in which the emotional impact can influence provision of care and decision making in patients with IBD. Ninety-three per cent agreed/strongly agreed the event provided them with ideas for establishing and managing reflective learning opportunities. Seventy-five per cent agreed/strongly agreed the event enabled them to identify different ways of responding to patients they work with.

Conclusion

Feedback from attendees identified a need and an expressed wish by IBD nurses to understand and explore how they are affected by their work, in relation to maintaining therapeutic and safe relationships with patients and maintaining their own well-being and job satisfaction. Learning needs relating to training in supervision, developing skills in responding to patients’ emotional states, tools for looking after one’s self and opportunities for group discussions and learning were identified. There is an opportunity to develop further learning and training events in relation to these identified needs. Further exploration of accessibility, funding and evaluation would be beneficial in identifying the impact, if any, of further training.

中文翻译：

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N19了解炎症性肠病的情感影响：照顾护士照顾病人

背景

炎症性肠病（IBD）的情感影响已得到充分证明。患者描述了困扰，焦虑，沮丧和关系困难（包括与医护人员）。与IBD患者一起工作的护士报告说，他们的情绪受到影响，担心“倦怠”，无法对患者做出有力的反应，并感到内，沮丧，悲伤和愤怒。在研究或护理文献中，了解和管理工作对IBD护士的情感影响是一个不足的领域。

方法

由Tavistock和Portman NHS基金会信托基金与IBD护士以及护理和心理疗法的同事合作开展的项目为英国的IBD护士开展了为期一天的活动。参加者是自我选择的，活动得到了Pharma的支持。这次会议的三个目标是：提供一个认识和理解对IBD患者工作的护士的情感影响的机会，提供一个交流的机会，并利用会议之前，之中和之后收集的信息来更清晰地了解护士的情况。经验和需求。会议前向与会者发送了问卷，在会议期间进行了观察（指出主题和困境），并提供了评估表。

结果

89％同意/强烈同意该事件，从而了解了IBD如何对患者产生情感和心理影响。89％同意/强烈同意该事件使人们了解了对IBD患者工作的护士的情感影响。89％同意/强烈同意该事件，从而了解了情绪影响可如何影响IBD患者的护理和决策。93％的人同意/强烈同意这次活动，为他们提供了建立和管理反思性学习机会的想法。75％同意/强烈同意该事件使他们能够确定对所治疗患者的不同反应方式。

结论

与会者的反馈表明，IBD护士有必要理解并探索他们如何受到工作影响，以维持与患者之间的治疗性和安全性关系以及维持他们自己的幸福感和工作满意度。确定了与监督培训有关的学习需求，发展了应对患者情绪状态的技能，照顾自己的工具以及进行小组讨论和学习的机会。有机会针对这些已确定的需求开展进一步的学习和培训活动。进一步探索可访问性，资金和评估将有助于确定进一步培训的影响（如果有）。