Background

IBD is an umbrella term used to describe Crohn’s disease and ulcerative colitis, both characterised as lifelong relapsing remitting diseases (O’Connor et al., 2013). Hope et al (2012) reported a significant increase in the incidence of childhood IBD in Ireland over a relatively short period of time.The aim of this research study was to assess the self-management and healthcare utilisation skills of adolescents and young adults (AYA) (aged 16–21 years) with (IBD).

Methods

Service users aged from 16 to 21 attending the IBD service were asked to complete the Transition Readiness Assessment Questionnaire (TRAQ). Divided into five domains, 20 questions related to: managing medications, appointment keeping, tracking health issues, talking with providers and managing daily activities.

Results

31 completed questionnaires were returned via stamped addressed envelope provided. Seventeen patients were diagnosed in a paediatric hospital and 14 were diagnosed in adult hospital services. Seventy-five per cent of respondents manage their own medications, 50% take responsibility for appointment keeping and 51% keep track of their health issues. Eighty-nine per cent talk to health care providers independently and 81% manage daily activities independently. Further analysis showed that females had significantly higher health tracking scores compared with males p = 0.04. Overall, 65% of all female users provided positive feedback regarding this domain. In male group this score reached only 40%. The biggest discrepancy was noted in relation to query concerning the list of questions before doctor`s visit. Almost 70% of females replied positively to this question, while only 28% of male patients provided positive answer. There was no significant difference in scores from those diagnosed in paediatric setting vs. those diagnosed in adult hospital services.

Conclusion

Some aspects of the appointment keeping as well as health tracking issues (especially in male group) were identified as domains that need further improvement. Ongoing education will be provided to patients attending the service with training focused on increasing awareness of the users in the most lacking domains.

中文翻译：

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N21在一家爱尔兰医院就诊的16-21岁患有炎症性肠病（IBD）的自我管理和医疗保健利用

背景

IBD是用于描述克罗恩氏病和溃疡性结肠炎的总称，两者均以终生复发性缓解疾病为特征（O'Connor等，2013）。Hope等人（2012）报告说，在相对较短的时间内，爱尔兰儿童IBD的发病率显着增加。本研究旨在评估青少年和年轻人的自我管理和医疗保健使用技能（AYA ）（16至21岁）与（IBD）。

方法

要求参加IBD服务的16至21岁的服务使用者填写《过渡准备评估问卷》（TRAQ）。分为五个领域，涉及20个问题：药物管理，预约，跟踪健康问题，与医疗服务提供者交谈以及管理日常活动。

结果

通过提供的加盖地址的信封返回了31份问卷。儿科医院诊断出十七名患者，成人医院诊断出十四名患者。75％的受访者管理自己的药物，50％的人负责约会，51％的人跟踪自己的健康问题。89％的人独立地与医疗保健提供者交谈，而81％的人独立地管理日常活动。进一步的分析表明，女性的健康追踪分数明显高于男性，p = 0.04。总体而言，所有女性用户中有65％对该领域提供了积极的反馈。在男性组中，该分数仅达到40％。在与医生就诊之前的问题清单有关的查询方面，注意到了最大的差异。几乎70％的女性对此问题的回答是肯定的，而只有28％的男性患者提供了肯定的答案。与在儿科环境中诊断出的分数相比，在成人医院服务中诊断出的分数没有显着差异。

结论

约会保留以及健康跟踪问题的某些方面（尤其是男性人群）被确定为需要进一步改进的领域。将为参加该服务的患者提供持续的教育，其培训的重点是提高最缺乏领域的用户的意识。