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Measuring atopic eczema symptoms in clinical practice: The first consensus statement from the Harmonising Outcome Measures for Eczema in clinical practice initiative.
Journal of the American Academy of Dermatology ( IF 12.8 ) Pub Date : 2020-01-08 , DOI: 10.1016/j.jaad.2019.12.055
Yael A Leshem 1 , Joanne R Chalmers 2 , Christian Apfelbacher 3 , Masutaka Furue 4 , Louise A A Gerbens 5 , Cecilia A C Prinsen 6 , Jochen Schmitt 7 , Phyllis I Spuls 5 , Kim S Thomas 2 , Hywel C Williams 2 , Eric L Simpson 8 ,
Affiliation  

BACKGROUND Measuring patient-centered outcomes in clinical practice is valuable for monitoring patients and advancing real-world research. A new initiative from the Harmonising Outcome Measures for Eczema (HOME) group aims to recommend what might be recorded for atopic eczema patients in routine clinical care. OBJECTIVES Prioritize outcome domains to measure atopic eczema in clinical practice and select valid and practical outcome measurement instruments for the highest-priority domain. METHODS An online survey of HOME members identified and ranked 21 possible health domains. Suitable instruments were then selected for the top-prioritized domain at the HOME VI meeting, using established consensus processes informed by systematic reviews of instrument quality. RESULTS Patient-reported symptoms was the top-prioritized domain. In accordance with psychometric properties and feasibility, there was consensus that the recommended instruments to measure atopic eczema symptoms in clinical practice are the POEM, the PO-SCORAD index, or both. The numeric rating scale for itch received support pending definition and validation in atopic eczema. CONCLUSION Following the first step of the HOME Clinical Practice initiative, we endorse using the POEM, the PO-SCORAD index, or both for measuring atopic eczema symptoms in clinical practice. Additional high-priority domains for clinical practice will be assessed at subsequent HOME meetings.

中文翻译:

在临床实践中测量异位性湿疹症状:《临床实践中湿疹协调成果措施》的第一份共识声明。

背景技术在临床实践中测量以患者为中心的结果对于监测患者和推进现实世界研究非常有价值。协调湿疹结果指标(HOME)小组的一项新计划旨在建议常规临床护理中特应性湿疹患者应记录的内容。目标确定结果域的优先级,以在临床实践中测量特应性湿疹,并为优先级最高的域选择有效且实用的结果测量工具。方法对HOME成员进行的在线调查确定并列出了21种可能的健康领域。然后,使用已建立的共识流程(通过对仪器质量的系统评价来告知),在HOME VI会议上为优先级最高的领域选择合适的仪器。结果患者报告的症状是最优先考虑的领域。根据心理测量学性质和可行性,已经达成共识,在临床实践中推荐的用于测量特应性湿疹症状的工具是POEM,PO-SCORAD指数或两者。瘙痒症的数字评分量表在特应性湿疹中获得支持,尚待定义和验证。结论在HOME Clinical Practice计划的第一步之后,我们赞同使用POEM,PO-SCORAD指数或两者用于在临床实践中测量特应性湿疹症状。后续的HOME会议将评估其他用于临床实践的高优先级领域。瘙痒症的数字评分量表在特应性湿疹中获得支持,尚待定义和验证。结论在HOME Clinical Practice计划的第一步之后,我们赞同使用POEM,PO-SCORAD指数或两者用于在临床实践中测量特应性湿疹症状。后续的HOME会议将评估其他用于临床实践的高优先级领域。瘙痒症的数字评分量表在特应性湿疹中获得支持,尚待定义和验证。结论在HOME Clinical Practice计划的第一步之后,我们赞同使用POEM,PO-SCORAD指数或两者用于在临床实践中测量特应性湿疹症状。后续的HOME会议将评估其他用于临床实践的高优先级领域。
更新日期:2020-01-08
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