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The haematopoietic stem cell transplant survivors' sense of coherence about their experiences: a qualitative study.
Supportive Care in Cancer ( IF 3.1 ) Pub Date : 2020-01-03 , DOI: 10.1007/s00520-019-05273-3
Umairah Bte Mohamed Sharin 1 , Chung Cheng Jordan Hwang 2 , Wei How Darryl Ang 3 , Violeta Lopez 4
Affiliation  

PURPOSE To explore the experiences of haematopoietic stem cell transplant survivors attending the long-term follow-up unit. METHODS A descriptive qualitative study of eight post-haematopoietic stem cell transplant survivors which were interviewed guided by the sense of coherence framework. Thematic analysis was used to extract meaningful explication of the survivors' experiences. RESULTS The post-haematopoietic stem cell transplant survivors interviewed were five females and three males with age ranging from 27 to 67 years and had the stem cell transplant between 4 and 20 years. Three main themes emerged from the data including (1) comprehending the experience, (2) acknowledging the meaningfulness of the experience and (3) managing threats to a new life after the transplant. The experiences of post-haematopoietic stem cell transplant survivors were initially difficult but they were able to make re-adjustments to their new life by reconciling with their new identity, refocusing on meaningful activities, strengthening their resilience and navigating the healthcare system. CONCLUSION In spite of the difficulties faced by the survivors, they were able to face the challenges and made adjustment in a positive light by focusing on the valuable aspects of their experiences. Health care practitioners need to continually support them throughout their survivorship journey no matter how long it takes. Any long-term follow-up unit is a step in the right direction to meet the complex needs of the survivors by integrating and adapting clinical guidelines into routine oncologic and transplant care so that survivors are not lost in transition following treatment.

中文翻译:

造血干细胞移植幸存者对其经历的连贯感:定性研究。

目的探讨参加长期随访的造血干细胞移植幸存者的经验。方法对描述性定性研究的八名造血干细胞移植后幸存者进行了相关性框架意义的访谈。主题分析用于提取幸存者经验的有意义的解释。结果接受造血后干细胞移植的幸存者分别为5名女性和3名男性,年龄从27至67岁不等,并且进行了4至20岁的干细胞移植。数据提出了三个主要主题,包括(1)理解经验,(2)承认经验的意义和(3)管理对移植后新生命的威胁。造血干细胞移植后幸存者最初的经历最初很困难,但他们能够通过与新身份保持一致,重新关注有意义的活动,增强其适应能力和导航医疗保健系统来重新调整自己的新生活。结论尽管幸存者面临困难,但他们仍然能够面对挑战,并通过专注于他们宝贵的经验,以积极的态度进行了调整。无论需要多长时间,医疗保健从业人员都需要在整个生存过程中不断为其提供支持。
更新日期:2020-01-04
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