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Reply to K.P. Weinfurt et al.
Journal of Clinical Oncology ( IF 45.3 ) Pub Date : 2020-01-02 , DOI: 10.1200/jco.19.02642
Nnenaya Q Agochukwu 1 , Daniela Wittmann 1 , Nicholas R Boileau 1 , Rodney L Dunn 1 , James Montie 1 , Tae Kim 1 , David C Miller 1 , James Peabody 1 , Noelle E Carlozzi 1
Affiliation  

Patient-reported outcomes (PROs) have the potential to transform patient-related care.1 PROs are reported directly from patients without interpretation by others and introduce a unique element into the patient-physician encounter.2 Although PROs have clear advantages, we agree with our colleagues that they are far from perfect, owing largely to their subjectivity.3 We would add that it is not just their subjectivity that is their limitation, but that, individually, they do not even approximate the complexity of human experience. Despite this, PROs offer unique insight into a patient’s experience and provide information on outcomes beyond morbidity and mortality, which is critical to patient care.4 Establishing the clinical usefulness of PROs is an ongoing process, and no one study can provide all the answers about the measurement properties of PROs.5 In addition, although measurement properties may be supported in some samples and under certain conditions, these same measurement properties may not be supported universally. It is important that we use PROs as part of a multimodal assessment of the patient experience if we wish to deliver top-notch personalized care to our patients.

中文翻译:

回复 KP Weinfurt 等人。

患者报告结果 (PROs) 有可能改变与患者相关的护理。1 PROs 直接从患者那里报告,无需他人解释,并在医患接触中引入了独特的元素。2尽管 PRO 具有明显的优势,但我们同意我们的同事的观点,即它们远非完美,主要是由于它们的主观性。3我们要补充的是,它们的局限性不仅在于它们的主观性,而且它们个别地甚至无法近似人类经验的复杂性。尽管如此,PROs 提供了对患者体验的独特见解,并提供了超出发病率和死亡率的结果信息,这对患者护理至关重要。4确定 PRO 的临床实用性是一个持续的过程,没有一项研究可以提供有关 PRO 测量特性的所有答案。5此外,尽管某些样本和某些条件下可能支持测量属性,但可能无法普遍支持这些相同的测量属性。如果我们希望为患者提供一流的个性化护理,我们将 PROs 用作患者体验多模式评估的一部分,这一点很重要。
更新日期:2020-02-18
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