The use of non-anonymized human genome data is becoming increasingly popular in research. Here we review the proceedings of a special meeting on this topic that took place at European Molecular Biology Organization (EMBO) in December 2014. The main points discussed centered on how to achieve 'anonymity,' 'trust,' and 'protection of data' in relation to new genomic technologies and research. Following our report of this meeting, we also raise three further issues for future consideration: the harmonization of international law in relation to genetic data protection; the complex issues around the 'dividual' nature of genetic data; and the growing commercial value of personal data. In conclusion, we stress the importance of scientists working in the area of genomic research engaging in interdisciplinary collaborations with humanities and social science scholars and addressing these complicated issues.

中文翻译：

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基因组研究中的隐私权，匿名性和主观性。

在研究中，非匿名人类基因组数据的使用正变得越来越流行。在这里，我们回顾了2014年12月在欧洲分子生物学组织（EMBO）上举行的关于该主题的特别会议的会议记录。讨论的重点是如何实现“匿名性”，“信任”和“数据保护”。与新的基因组技术和研究有关。根据本次会议的报告，我们还提出了三个进一步的问题，以供将来审议：与遗传数据保护有关的国际法的统一；围绕遗传数据“个体”性质的复杂问题；以及个人数据日益增长的商业价值。结论，