BACKGROUND The current status of site-specific cancer registry has not been elucidated, but sufficient system is found in some societies. The purpose of this study was to clear the present condition of site-specific cancer registries in Japan and to suggest for the improvement. METHODS The questionnaire was conducted by the study group of the Ministry of Health, Labor, and Welfare. It consisted of 38 questions, conflicts of interest, clinical research method, informed consent and funding for registry. We distributed this questionnaire to 28 academic societies, which had published the clinical practice guideline(s) assessed under Medical Information Network Distribution Service (MINDS). RESULTS The concept of the importance in assessment for medical quality by the data of the site-specific cancer registry was in good consensus. But the number of the society with the mature registry was limited. The whole-year registry with the scientific researches in the National Clinical Database (NCD) and in the Translational Research Informatics Center (TRI) might seem to be in success, because assured enhancement may be estimated. Now, academic societies have the structural factors, i.e., the financial limitation in the registry maintenance and the data analysis, and in the difficulty of employment of the researchers with skill and talent. CONCLUSIONS To manage the site-specific cancer registry effectively, the scientific registry system will be essentially important. Each academic society had much experienced highly qualified clinical researches in past. Accordingly, the scientific suggestion and co-operation should be of great importance for the improvement.

中文翻译：

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用于临床研究的特定部位癌症注册系统的当前状态：旨在通过评估当前的医疗保健为将来做出贡献。

背景技术尚未阐明特定部位癌症登记系统的当前状态，但是在某些社会中发现了足够的系统。这项研究的目的是明确日本特定部位癌症登记处的现状并提出改进建议。方法问卷由厚生劳动省研究小组进行。它由38个问题，利益冲突，临床研究方法，知情同意书和注册资金组成。我们将此问卷分发给了28个学术协会，这些协会已发布了根据医学信息网络分发服务（MINDS）评估的临床实践指南。结果通过特定部位癌症登记数据评估医疗质量的重要性的概念已达成共识。但是拥有成熟注册机构的社会数量有限。国家临床数据库（NCD）和转化研究信息学中心（TRI）中具有科学研究成果的全年注册中心似乎似乎是成功的，因为可以估计可以肯定的增强。现在，学术社团已具有结构性因素，即注册管理机构维护和数据分析中的财务限制，以及具有技能和才干的研究人员的就业困难。结论为了有效地管理特定部位的癌症登记系统，科学的登记系统至关重要。过去，每个学术团体都拥有经验丰富的高质量临床研究。因此，科学的建议和合作对于改进是非常重要的。