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Quality of Life in Families of Young Children With Autism Spectrum Disorder.
American Journal on Intellectual and Developmental Disabilities ( IF 1.9 ) Pub Date : 2019-11-01 , DOI: 10.1352/1944-7558-124.6.535
Catherine Mello 1 , Mélina Rivard 1 , Amélie Terroux 1 , Céline Mercier 1
Affiliation  

The present study investigated family quality of life (FQOL) as experienced by 493 mothers and fathers (295 families) of young children with autism spectrum disorder (ASD) prior to receiving early intervention services in the province of Québec. These families were most satisfied with their physical and material well-being and least satisfied with their family interactions. Children's level of functioning across various standardized and subjective measures were positively associated with parents' FQOL. In both parents, family characteristics associated with financial and personal resources were also linked to FQOL. The child's age and the number of children were associated with mothers' FQOL. Overall, these findings provide a portrait of ASD-related stressors and resources relevant to both parents during the early childhood period.

中文翻译:

自闭症谱系障碍幼儿家庭的生活质量。

本研究调查了魁北克省接受早期干预服务之前,自闭症谱系障碍(ASD)的493名年幼的父母(295个家庭)的家庭生活质量(FQOL)。这些家庭对他们的身体和物质福祉最满意,对他们的家庭互动最不满意。各种标准化和主观措施中儿童的功能水平与父母的FQOL呈正相关。在父母双方中,与财务和个人资源相关的家庭特征也与FQOL相关。孩子的年龄和孩子的数量与母亲的FQOL有关​​。总体而言,这些发现提供了与儿童早期阶段与父母双方有关的与ASD相关的压力源和资源的肖像。
更新日期:2019-11-01
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