ABSTRACT

Purpose

To study the association between fatigue and participation and QoL after acquired brain injury (ABI) in adolescents and young adults (AYAs).

Materials & Methods

Cross-sectional study with AYAs aged 14–25 years, diagnosed with ABI. The PedsQL™ Multidimensional Fatigue Scale, Child & Adolescent Scale of Participation, and PedsQL™4.0 Generic Core Scales were administered.

Results

Sixty-four AYAs participated in the study, 47 with traumatic brain injury (TBI). Median age at admission was 17.6 yrs, 0.8 yrs since injury. High levels of fatigue (median 44.4 (IQR 34.7, 59.7)), limited participation (median 82.5 (IQR 68.8, 92.3)), and diminished QoL (median 63.0 (IQR 47.8, 78.3)) were reported. More fatigue was significantly associated with more participation restrictions (β 0.64, 95%CI 0.44, 0.85) and diminished QoL (β 0.87, 95%CI 0.72, 1.02).

Conclusions

AYAs with ABI reported high levels of fatigue, limited participation and diminished quality of life with a significant association between fatigue and both participation and QoL. Targeting fatigue in rehabilitation treatment could potentially improve participation and QoL.

中文翻译：

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门诊康复人群中获得性脑损伤的青少年和青少年的疲劳，参与和生活质量。

摘要

目的

研究青少年和年轻人（AYAs）获得性脑损伤（ABI）后疲劳与参与和生活质量之间的关系。

材料与方法

对诊断为ABI的14-25岁AYA进行横断面研究。进行了PedsQL™多维疲劳量表，儿童和青少年参与量表以及PedsQL™4.0通用核心量表。

结果

共有64位AYA参与了这项研究，其中47位患有脑外伤（TBI）。入院时的中位年龄为17.6岁，受伤后为0.8岁。据报道，疲劳程度高（中位数44.4（IQR 34.7，59.7）），有限的参与（中位数82.5（IQR 68.8，92.3））和QoL降低（中位数63.0（IQR 47.8，78.3））。疲劳加剧与更多的参与限制显着相关（β0.64，95％CI 0.44，0.85）和QoL降低（β0.87，95％CI 0.72，1.02）。

结论

患有ABI的AYAs报告说疲劳程度高，参与度有限，生活质量下降，疲劳与参与度和QoL均呈显着关联。针对康复治疗中的疲劳可能会改善参与度和生活质量。