BACKGROUND Self-management of heart failure (HF) is often a joint venture between patients and their friends and family ("framily"). However, this joint experience is often overlooked in clinical care. OBJECTIVES The aim of this study was to understand the cognitive, emotional, and relational elements affecting the experience of patient-framily member dyads managing HF. METHODS Participants were patients with HF receiving care at a university hospital and their framily. Dyads participated in 30- to 45-minute semistructured interviews before their clinic visit. Transcribed interviews were analyzed using thematic analyses. Interviews were coded independently and checked for interrater agreement before the final coded data set was developed. Participants were recruited until thematic saturation was attained. RESULTS A total of 16 patient-framily member dyads and 1 triad (n = 35) participated in the study; 47.1% of patients and 77.8% of framily members were female. Patients were 66 years old (SD, 14 years) and framily members were 59 years old (SD, 12.3 years). Three aspects of the dyadic experience emerged in the themes: (1) health beliefs of dyads were characterized by acceptance and optimism, but also pessimism; (2) negative emotions influenced the dyadic experience; (3) the closeness of their interpersonal relationships influenced their contributions to managing HF. CONCLUSIONS Our study suggests that greater attention to the experience and interpersonal relationships of dyads has the potential for improving HF self-management and facilitating patient-centered care.

中文翻译：

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处理心力衰竭的二元经验：定性研究。

背景技术心力衰竭（HF）的自我管理通常是患者及其朋友和家人之间的合资企业（“脆弱的”）。但是，这种联合经验在临床护理中常常被忽略。目的本研究的目的是了解影响治疗HF的患者虚构成员二元组体验的认知，情感和关系因素。方法参与者是在大学医院及其家属中接受治疗的HF患者。在访问诊所之前，Dyads参加了30到45分钟的半结构化访谈。转录的访谈使用主题分析进行了分析。在开发最终的编码数据集之前，对访谈进行了独立编码，并检查了相互之间的同意。招募参与者直到主题达到饱和为止。结果共有16位患者虚构成员二元组和1个三元组（n = 35）参与了研究；47.1％的患者和77.8％的家庭成员是女性。患者为66岁（S​​D，14岁），家庭成员为59岁（SD，12.3岁）。主题中出现了三分之二的经验：（1）对二分体的健康信念的特征是接受和乐观，但也有悲观主义。（2）负面情绪影响二元体验；（3）他们之间人际关系的亲密程度影响了他们对HF的管理。结论我们的研究表明，对二重体的经验和人际关系的更多关注可能会改善HF自我管理并促进以患者为中心的护理。1％的患者和77.8％的家庭成员是女性。患者为66岁（S​​D，14岁），家庭成员为59岁（SD，12.3岁）。主题中出现了三分之二的经验：（1）对二分体的健康信念的特征是接受和乐观，但也有悲观主义。（2）负面情绪影响二元体验；（3）他们之间人际关系的亲密程度影响了他们对HF的管理。结论我们的研究表明，对二重体的经验和人际关系的更多关注可能会改善HF自我管理并促进以患者为中心的护理。1％的患者和77.8％的家庭成员是女性。患者为66岁（S​​D，14岁），家庭成员为59岁（SD，12.3岁）。主题中出现了三分之二的经验：（1）对二分体的健康信念的特征是接受和乐观，但也有悲观主义。（2）负面情绪影响二元体验；（3）他们之间人际关系的亲密程度影响了他们对HF的管理。结论我们的研究表明，对二重体的经验和人际关系的更多关注可能会改善HF自我管理并促进以患者为中心的护理。主题中出现了三分之二的经验：（1）对二分体的健康信念的特征是接受和乐观，但也有悲观主义。（2）负面情绪影响二元体验；（3）他们之间人际关系的亲密程度影响了他们对HF的管理。结论我们的研究表明，对二重体的经验和人际关系的更多关注可能会改善HF自我管理并促进以患者为中心的护理。主题中出现了三分之二的经验：（1）对二分体的健康信念的特征是接受和乐观，但也有悲观主义。（2）负面情绪影响二元体验；（3）他们之间人际关系的亲密程度影响了他们对HF的管理。结论我们的研究表明，对二重体的经验和人际关系的更多关注可能会改善HF自我管理并促进以患者为中心的护理。