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Participatory praxis as an imperative for health-related stigma research.
BMC Medicine ( IF 9.3 ) Pub Date : 2019-02-16 , DOI: 10.1186/s12916-019-1263-3
Laurel Sprague 1 , Rima Afifi 2 , George Ayala 3 , Musah Lumumba El-Nasoor 4
Affiliation  

BACKGROUND Participatory praxis is increasingly valued for the reliability, validity, and relevance of research results that it fosters. Participatory methods become an imperative in health-related stigma research, where the constitutive elements of stigma, healthcare settings, and research each operate on hierarchies that push those with less social power to the margins. DISCUSSION Particularly for people who are stigmatized, participatory methods balance the scales of equity by restructuring power relationships. As such, participatory praxis facilitates a research process that is responsive to community-identified priorities and creates community ownership of the research, catalyzing policy change at multiple levels and foregrounds, and addresses risks to communities from participating in research. Additionally, through upholding the agency and leadership of communities facing stigma, it can help to mitigate stigma's harmful effects. Health-related stigma research can reduce the health inequities faced by stigmatized groups if funders and institutions require and reward community participation and if researchers commit to reflexive, participatory practices. A research agenda focused on participatory praxis in health-related stigma research could stimulate increased use of such methods. CONCLUSION For community-engaged practice to become more than an ethical aspiration, structural changes in the funding, training, publishing, and tenure processes will be necessary.

中文翻译:

参与实践是健康相关耻辱研究的必要条件。

背景技术参与式实践因其所促进的研究结果的可靠性、有效性和相关性而日益受到重视。参与式方法成为与健康相关的耻辱研究的必要条件,其中耻辱、医疗保健环境和研究的构成要素各自在等级制度上运作,将那些社会权力较小的人推向边缘。讨论 特别是对于那些受到污名化的人来说,参与式方法通过重组权力关系来平衡公平的规模。因此,参与式实践促进了研究过程,该过程响应社区确定的优先事项,并创建社区对研究的所有权,促进多个层面和前景的政策变化,并解决社区参与研究的风险。此外,通过维护面临耻辱的社区的机构和领导力,可以帮助减轻耻辱的有害影响。如果资助者和机构要求并奖励社区参与,并且研究人员致力于反思性的参与性实践,那么与健康相关的耻辱研究可以减少受耻辱群体面临的健康不平等。以健康相关耻辱研究中的参与性实践为重点的研究议程可以刺激更多地使用此类方法。结论 为了使社区参与实践不仅仅是一种道德愿望,有必要对资助、培训、出版和权属流程进行结构性变革。
更新日期:2019-02-15
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