INTRODUCTION Understanding the experiences of people who live with primary progressive aphasia (PPA) can inform the development of appropriate speech-language pathology services for this population. This review aimed to summarize the qualitative research on the experience of living with PPA from the perspective of the individuals with the disorder and their families. METHODS A scoping review was conducted. RESULTS Eight studies met the inclusion criteria. Themes in the 3 investigations that focused on the individual's perspective included adapting to overcome language difficulties and dealing with increased dependency. Themes identified in the 5 studies that highlighted the family's perspective included observing and adapting to language, behavioral, and social communication changes; lack of awareness of PPA; control; and the impact of the historical relationship. DISCUSSION Experiences from the 2 perspectives differed. Further research is needed, particularly in relation to identifying the general experience of PPA from the perspective of individuals with the disorder.

中文翻译：

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原发性进行性失语症的生活经历：定性研究的范围审查。


简介 了解原发性进行性失语症 (PPA) 患者的经历可以为该人群制定适当的言语病理学服务提供信息。本综述旨在从 PPA 患者及其家人的角度总结有关 PPA 生活经历的定性研究。方法 进行了范围界定审查。结果 八项研究符合纳入标准。 3 项调查的主题侧重于个人的观点，包括适应克服语言困难和应对日益增加的依赖性。五项研究中确定的主题强调了家庭的观点，包括观察和适应语言、行为和社会沟通的变化；缺乏购电协议意识；控制;以及历史关系的影响。讨论 两个角度的经验各不相同。需要进一步的研究，特别是从患有该疾病的个体的角度来确定 PPA 的一般体验。