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The Human Right to Science and the Regulation of Human Germline Engineering.
The CRISPR Journal ( IF 3.7 ) Pub Date : 2019-06-01 , DOI: 10.1089/crispr.2018.0053
Andrea Boggio 1 , Bartha M Knoppers 2 , Jessica Almqvist 3 , Cesare P R Romano 4
Affiliation  

There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline.

中文翻译:

科学的人权与人类生殖工程的规范。

目前尚无关于如何规范人类种系工程的国际共识。现有的国家立法未能提供在CRISPR时代规范种系工程的必要治理框架。这是科学和临床发展的障碍,并且不符合人权要求。为了向前迈进,我们建议科学人权是在国家和国际层面上就促进负责任的科学技术进步的管理原则达成共识的理想起点。监管框架必须认识到现代种系基因组工程研究的国际性,需要共同治理而不是技术锁定的禁令,以及人类不是其种系这一事实。
更新日期:2019-11-01
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