Europe’s growing awareness of gaps in its healthcare provision is not being matched by an increase in remedial action – despite the rich transformative potential of new approaches to data. The new availability of data offers policymakers tools that would allow Europe’s huge investments in health to be far better spent, by being properly targeted. The result would be far better health for far more Europeans. But that requires a step that most European policymakers have not been ready to take. They need to cooperate so that the data can be shared and its full value realised. This paper explores the potential and the challenges that stand in the way of mobilising health data for wider health benefits. This paper goes on to summarise the results of a survey on how different components of the healthcare sector perceive the opportunities from mobilising data effectively, and the barriers to doing so. The responses demonstrated a widespread genuine will to promote research and innovation, and its take-up, for the betterment of healthcare. There was strong appreciation of the merits of data sharing and readiness – under the right circumstances – to share personal health data for research purposes and to undergo genetic sequencing. This paper also suggests the strategic direction that should influence policy formation. The solution can be found without changing the EU treaties, which already provide an adequate base for cooperation. Properly handled, the problems facing European healthcare can be turned into major assets for Europe and make it easier for citizens to have equal access to high-quality care through the meaningful use of digital innovations.

中文翻译：

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数据合作：为欧洲医疗保健系统带来真正创新的缺失元素

尽管新的数据方法具有巨大的变革潜力，但欧洲对其医疗保健供应差距的认识不断提高，但补救行动的增加并未与之相匹配。新的数据可用性为政策制定者提供了工具，通过适当定位，可以使欧洲在卫生方面的巨额投资得到更好的利用。结果将是更多欧洲人的健康状况要好得多。但这需要大多数欧洲决策者尚未准备好采取的步骤。他们需要合作，以便共享数据并实现其全部价值。本文探讨了在动员健康数据以获得更广泛的健康益处的方式中存在的潜力和挑战。本文继续总结了一项关于医疗保健部门的不同组成部分如何看待有效调动数据的机会以及这样做的障碍的调查结果。这些回应表明了促进研究和创新及其采用以改善医疗保健的广泛真诚意愿。人们高度赞赏数据共享的优点，并在适当的情况下准备好为研究目的共享个人健康数据并进行基因测序。本文还提出了应该影响政策形成的战略方向。可以在不改变已经为合作提供充分基础的欧盟条约的情况下找到解决方案。处理得当，