The objective of this study is to assess the impact of inflammatory arthritis on young adults' activity participation using quantitative and qualitative methods to advance the field's conceptualization of functional status. Young adults diagnosed with juvenile idiopathic arthritis or rheumatoid arthritis completed (1) the Health Assessment Questionnaire-Disability Index to determine functional status and (2) the day reconstruction method to explore experiential dimensions of function, including functional performance, functional satisfaction, and severity of arthritis symptoms during activities on the previous day. Bivariate analyses were conducted to examine relationships between functional status, experiential variables, and demographic variables. Open-ended questions were provided for participants to report ways that arthritis affected their participation that were not otherwise reflected within survey questions; responses were numerically coded using summative content analysis. Among 37 participants (24.8 ± 3.3 years old), 70% reported moderate-to-severe disability. On average, participants experienced pain, stiffness, or fatigue for more than 50% of their waking hours. Functional status significantly correlated with functional performance (r = - 0.39, p = 0.02) and satisfaction (r = - 0.39, p = 0.02), yet did not correlate with stiffness or fatigue severity or duration of symptoms throughout the day. Participants described strategies that improved their ability to participate in certain activities but reduced their overall quality of activity engagement and caused emotional distress. Young adults with arthritis may experience more significant functional limitations than previously reported. Traditional measures of functional assessment may not capture experiential components of activity that affect participation, such as severity of stiffness or fatigue or the duration of symptoms throughout the day.

中文翻译：

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通过青少年炎症性关节炎的经历重新概念化功能状态。

这项研究的目的是使用定量和定性方法评估炎症性关节炎对年轻人活动参与的影响，以促进该领域功能状态的概念化。被诊断患有青少年特发性关节炎或类风湿关节炎的年轻人已完成（1）健康评估问卷-残疾指数以确定功能状态，以及（2）日间重建方法以探索功能的体验维度，包括功能性能，功能满意度和严重程度前一天活动中的关节炎症状。进行双变量分析以检查功能状态，经验变量和人口统计学变量之间的关系。向参与者提供了开放式问题，以报告关节炎如何影响他们的参与，而调查问题并未以其他方式反映这些问题；使用总结性内容分析对回复进行数字编码。在37名参与者（24.8±3.3岁）中，70％的人报告中度至重度残疾。平均而言，参与者在醒着的50％以上时间内经历了疼痛，僵硬或疲劳。功能状态与功能表现（r =-0.39，p = 0.02）和满意度（r =-0.39，p = 0.02）显着相关，但与全天的僵硬或疲劳严重程度或症状持续时间无关。参与者介绍了一些策略，这些策略可以提高他们参加某些活动的能力，但会降低他们的整体活动参与质量并引起情绪困扰。与先前报道的相比，患有关节炎的年轻成年人可能会遇到更明显的功能限制。传统的功能评估方法可能无法捕获影响参与的活动的体验性组成部分，例如僵硬或疲劳的严重程度或一天中症状的持续时间。