当前位置: X-MOL 学术Kennedy Institute of Ethics Journal › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Sharing with Strangers: Governance Models for Borderless Genomic Research in a Territorial World.
Kennedy Institute of Ethics Journal ( IF 1.1 ) Pub Date : 2019-01-01 , DOI: 10.1353/ken.2019.0000
Eric T Juengst , Eric M Meslin

ABSTRACT:One of the practices that has defined the ethos of genomic research to date is a commitment to open and rapid sharing of genomic data and resources. As genomic research evolves into an international enterprise, this commitment is being challenged by the need to respect the interests of those it involves and implicates, from individual scientists and subjects to institutions and nations. In this essay, we first describe the types of claims that different stakeholders are making about the disposition of genomic data and samples. Next, we illustrate the complexities of these multiple claims by applying them to the case of one ongoing international genomics initiative, the H3Africa Consortium. Finally, in the light of these complexities, we conclude by comparing and contrasting four governance models for future international data-sharing policy and practices in genomics.

中文翻译:

与陌生人共享:领土世界中无边界基因组研究的治理模型。

摘要:迄今为止定义基因组研究精神的一种实践是致力于开放和快速共享基因组数据和资源。随着基因组研究发展成为国际企业,这一承诺正受到尊重尊重其所涉及和牵连的人们(从个别科学家和学科到机构和国家)利益的挑战。在本文中,我们首先描述不同的利益相关者对基因组数据和样本的处理所主张的类型。接下来,我们通过将它们应用于一个正在进行的国际基因组计划(H3Africa Consortium)的案例来说明这些多重要求的复杂性。最后,鉴于这些复杂性,
更新日期:2019-01-01
down
wechat
bug