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Transition from pediatric to adult epilepsy care: a difficult process marked by medical and social crisis.
Epilepsy Currents ( IF 3.6 ) Pub Date : 2012-07-01 , DOI: 10.5698/1535-7511-12.4s.13
Peter Camfield 1 , Carol Camfield , Bernd Pohlmann-Eden
Affiliation  

When epilepsy does not remit in childhood, transition and transfer to adult care is eventually required. Youth must leave the family-centered approach of pediatric care for the individual focus of adult medicine. Evidence from population-based studies indicates that many of those with childhood-onset epilepsy have major social difficulties in adulthood even if their epilepsy has resolved. Epilepsy may have major effects on normal adolescent development, and societal attitudes confound this difficult period in the lives of young people with epilepsy. Very little objective data are available to assist in the designing of models of care for youth with epilepsy; however, based on our clinical experience and the limited available literature, it appears that a transition program to prepare children for adult care is best started during childhood and adolescence. The formal transfer to adult services may be assisted by a transition clinic jointly attended by pediatric and adult epilepsy specialists.

中文翻译:

从儿科到成人癫痫护理的过渡:一个以医疗和社会危机为标志的艰难过程。

当癫痫症在儿童期没有缓解时,最终需要过渡和转移到成人护理。青少年必须离开以家庭为中心的儿科护理方法,转而关注成人医学的个人重点。来自基于人群的研究的证据表明,许多儿童期癫痫症患者在成年后仍存在严重的社交困难,即使他们的癫痫症已经解决。癫痫可能对正常的青少年发育产生重大影响,社会态度混淆了青少年癫痫患者生活中的这一困难时期。很少有客观数据可用于协助设计青少年癫痫护理模式;然而,根据我们的临床经验和有限的可用文献,看来最好在童年和青春期开始为儿童准备接受成人照料的过渡方案。由儿科和成人癫痫专家共同参加的过渡诊所可以协助正式转移到成人服务。
更新日期:2019-11-01
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