Sociological literature has explored how shifts in the point at which individuals may be designated as diseased impact upon experiences of ill health. Research has shown that experiences of being genetically “at risk” are shaped by and shape familial relations, coping strategies, and new forms of biosociality. Less is known about how living with genetic risk is negotiated in the everyday and over time, and the wider forms of identity, communities and care this involves. This article explores these arrangements drawing on online bloggers’ accounts of Familial Adenomatous Polyposis (FAP). We show how accounts of genetic risk co-exist with more palpable experiences of FAP in everyday life, notably the consequences of prophylactic surgeries. We consider how the act of blogging represents but also constitutes everyday experiences of hereditary cancer syndrome as simultaneously ordinary and exceptional, and reflect on the implications of our analysis for understanding experiences of genetic cancer risk.

中文翻译：

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遗传性结直肠癌综合征在线账户中的身份、社区和护理


社会学文献探讨了个体被指定为患病的时间点的变化如何影响不健康的经历。研究表明，基因“处于危险之中”的经历是由家庭关系、应对策略和新形式的生物社会性塑造的。人们对如何在日常生活中和随着时间的推移与遗传风险进行协商以及其中涉及的更广泛的身份、社区和护理形式知之甚少。本文根据在线博主对家族性腺瘤性息肉病 (FAP) 的描述来探讨这些安排。我们展示了遗传风险的描述如何与日常生活中更明显的 FAP 经历共存，特别是预防性手术的后果。我们考虑博客行为如何代表遗传性癌症综合征的日常经历，同时也构成了遗传性癌症综合征的日常经历，既普通又特殊，并反思了我们的分析对于理解遗传性癌症风险经历的影响。