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The social dimension of biobanking: objectives and challenges
Life Sciences, Society and Policy Pub Date : 2017-09-13 , DOI: 10.1186/s40504-017-0059-5
E V Bryzgalina 1, 2, 3, 4, 5 , K Y Alasania 1, 2, 3, 4, 5 , T A Varkhotov 1, 2, 3, 4, 5 , S M Gavrilenko 1, 2, 3, 4, 5 , E M Shkomova 1, 2, 3, 4, 5
Affiliation  

The present article allows to explore, analyze and reflect on the consequences and problems posed by biobanks and attempts to prove the need of social and humanitarian support in establishing and functioning of biobanks as a new type of scientific institutions. The basis of the article is the latest publications devoted to social and humanitarian aspects of biobanking and Russian experience of the initial formation of this subject domain (before the first professional biobanks were established in Russia in the 2010-s, the only highly specialized collections of bio-samples had been registered). The article marks and classifies different aspects of biobanking that objectively demands the participation of specialists in ethics and social sciences. The cases of biobanking development and risks are estimated; the objective need of applied ethics and social sciences specialists’ participation in biobanking is proved.

中文翻译:


生物样本库的社会层面:目标和挑战



本文探讨、分析和反思生物样本库带来的后果和问题,并试图证明生物样本库作为一种新型科学机构的建立和运作需要社会和人道主义支持。本文的基础是致力于生物样本库的社会和人道主义方面的最新出版物以及俄罗斯在该主题领域初步形成的经验(在 2010 年代俄罗斯建立第一个专业生物样本库之前,唯一高度专业化的生物样本库集合)。生物样本已注册)。该文章对生物样本库的不同方面进行了标记和分类,客观上需要伦理学和社会科学专家的参与。生物样本库发展案例及风险评估;证明了应用伦理学和社会科学专家参与生物样本库的客观需要。
更新日期:2017-09-13
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