This practice resource is designed primarily as an educational resource for medical geneticists and other clinicians to help them provide quality medical services. Adherence to this practice resource is completely voluntary and does not necessarily assure a successful medical outcome. This practice resource should not be considered inclusive of all proper procedures and tests or exclusive of other procedures and tests that are reasonably directed to obtaining the same results. In determining the propriety of any specific procedure or test, the clinician should apply his or her own professional judgment to the specific clinical circumstances presented by the individual patient or specimen. Clinicians are encouraged to document the reasons for the use of a particular procedure or test, whether or not it is in conformance with this practice resource. Clinicians also are advised to take notice of the date this practice resource was adopted, and to consider other medical and scientific information that becomes available after that date. It also would be prudent to consider whether intellectual property interests may restrict the performance of certain tests and other procedures.

中文翻译：

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1 型神经纤维瘤病成人的护理：美国医学遗传学和基因组学学院 (ACMG) 的临床实践资源。

该实践资源主要用作医学遗传学家和其他临床医生的教育资源，以帮助他们提供优质的医疗服务。遵守此实践资源完全是自愿的，并不一定能保证成功的医疗结果。该实践资源不应被视为包括所有适当的程序和测试，或不包括合理地用于获得相同结果的其他程序和测试。在确定任何特定程序或测试的适当性时，临床医生应将他或她自己的专业判断应用于个体患者或样本所呈现的特定临床情况。鼓励临床医生记录使用特定程序或测试的原因，无论它是否符合本实践资源。还建议临床医生注意该实践资源的采用日期，并考虑在该日期之后可用的其他医学和科学信息。谨慎考虑知识产权利益是否会限制某些测试和其他程序的执行。