Nigel Hawkes discovers how shortlisted teams are using the principles of co-production to provide the care that patients want and need
Many people die in hospital, though they might not choose to. So, it is legitimate to ask how good hospitals are at dealing with bereavement, as did the Cheshire and Merseyside Palliative and End of Life Care Network. Working with a group of service users under the banner People’s Voice, they commissioned a survey of relatives of those who had died in hospices, hospitals, or at home. “The experience of hospitals fell below those of the other two,” says Julie Raj, a palliative care consultant at Aintree Hospital in Liverpool and chair of the group.
A shortage of information and a lack of adequate support were among the complaints. The group set out to produce guidance, in the form of a specification which trusts should seek to meet. “We know that resources are limited,” she says, “so we produced both a minimum and a gold specification. All hospitals should have the minimum standard in place, while the gold standard is an aspiration.”
The specification includes what should be on hospital websites, signposting and information leaflets, facilities for families and carers, bereavement office and mortuary support, and staff training and education.
“Our aim is to inform people who work in hospitals and make them look at the services they offer, and where the gaps are,” Raj says. “Measuring outcomes is difficult with an initiative like this, but our plan is to visit all the trusts in Cheshire and Merseyside and measure how they’re implementing the guidance. I hope a survey of bereaved relatives will also show an improved experience.”
Irritable bowel disease (IBD) is a lifelong …

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2018年度BMJ奖：年度患者合作团队

奈杰尔·霍克斯（Nigel Hawkes）发现了入围团队如何利用联合生产的原则来提供患者想要和需要的护理。
许多人可能死于医院，尽管他们可能不会选择这样做。因此，有必要询问医院在应对丧亲问题方面的表现如何，就像柴郡和默西塞德郡姑息治疗和临终关怀网络一样。他们与一群服务用户一起在“人民之声”的旗帜下进行了一项调查，调查了在医院，医院或家庭中死亡的亲属。“医院的经验低于其他两家医院的经验，”利物浦Aintree医院姑息治疗顾问，该小组主席朱莉·拉吉（Julie Raj）说。
这些投诉包括缺乏信息和缺乏足够的支持。该小组着手以规范的形式提供指导，信托应寻求满足。她说：“我们知道资源有限，因此我们制定了最低要求和黄金要求。所有医院都应该有最低标准，而黄金标准是一个愿望。”
该规范包括医院网站上的内容，路标和信息传单，家庭和护理人员设施，丧亲办公室和房支持以及员工培训和教育。
拉吉说：“我们的目标是告知在医院工作的人们，让他们了解他们所提供的服务以及差距在哪里。” “通过这样的计划很难衡量结果，但是我们的计划是拜访柴郡和默西塞德郡的所有信托机构，并衡量他们如何实施指南。我希望对丧亲者的调查也能带来更好的体验。”
肠易激病（IBD）是终生的…