We previously designed the Down Syndrome Societal Services and Supports Survey (DS-4S) to measure country-specific supports for people with Down syndrome (DS) across multiple life domains (healthcare, education, policy, independence, and community inclusion). We now report and analyze the results. We partnered with international DS consortia, who distributed the DS-4S to 154 cumulative members representing over 100 countries. Organizations were included if they had a holistic focus on the lives of people with DS and if at least 50% of their members either have DS or are family members of people with DS. Factor analysis was used to analyze the results. We received survey responses from 55 different organizations in 50 countries who met inclusion criteria. Each country had complete data for at least 4 of the 5 domains. The lowest 5 scores were from countries in Africa and Asia; the highest 5 scores were in Europe and North America. The responses to the DS-4S stratified countries within each surveyed domain. The DS-4S can now be used to track countries’ progress over time and to determine which countries have best practices that might be replicated. We will publish the results and update them biennially at .

中文翻译：

---

首次国际唐氏综合症社会服务和支持调查结果

我们之前设计了唐氏综合症社会服务和支持调查 (DS-4S)，以衡量特定国家/地区在多个生活领域（医疗保健、教育、政策、独立和社区包容）对唐氏综合症 (DS) 患者的支持。我们现在报告并分析结果。我们与国际 DS 联盟合作，该联盟将 DS-4S 分发给来自 100 多个国家/地区的累计 154 名成员。如果组织全面关注 DS 患者的生活，并且其至少 50% 的成员患有 DS 或是 DS 患者的家庭成员，则该组织将被纳入其中。采用因素分析法对结果进行分析。我们收到了来自 50 个国家/地区 55 个符合纳入标准的不同组织的调查回复。每个国家都拥有 5 个领域中至少 4 个领域的完整数据。得分最低的5个国家来自非洲和亚洲；得分最高的5个是欧洲和北美。对 DS-4S 的答复对每个调查领域内的国家进行了分层。 DS-4S 现在可用于跟踪各国随时间的进展，并确定哪些国家拥有可以复制的最佳实践。我们将发布结果并每两年更新一次。