Congenital heart disease (CHD) is the most common birth defect with prevalence of 0.8%. Thanks to tremendous progress in medical and surgical practice, nowadays, >90% of children survive into adulthood. Recently European Society of Cardiology (ESC), American College of Cardiology (ACC)/ American Heart Association (AHA) issued guidelines which offer diagnostic and therapeutic recommendations for the different defect categories. However, the type of technical exams and their frequency of follow-up may vary largely between clinicians and centres. We aimed to present an overview of available diagnostic modalities and describe current surveillance practices by cardiologists taking care of adults with CHD (ACHD). A questionnaire was used to assess the frequency cardiologists treating ACHD for at least one year administrated the most common diagnostic tests for ACHD. The most frequently employed diagnostic modalities were ECG and echocardiography for both mild and moderate/severe CHD. Sixty-seven percent of respondents reported that they routinely address psychosocial well-being. Differences exist between reported current clinical practice and published guidelines. This is particularly true for the care of patients with mild lesions. In addition, some differences exist between ESC and American guidelines, with more frequent surveillance suggested by the Americans.

中文翻译：

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成人先天性心脏病的监测：现行指南和实际临床实践

先天性心脏病（CHD）是最常见的出生缺陷，患病率为 0.8%。由于医疗和外科实践的巨大进步，如今超过 90% 的儿童能够存活到成年。最近，欧洲心脏病学会 (ESC)、美国心脏病学会 (ACC)/美国心脏协会 (AHA) 发布了指南，为不同缺陷类别提供诊断和治疗建议。然而，技术检查的类型及其随访频率在临床医生和中心之间可能有很大差异。我们的目的是概述现有的诊断方式，并描述心脏病专家目前治疗成人先心病 (ACHD) 的监测实践。使用问卷调查来评估治疗 ACHD 至少一年的心脏病专家进行最常见的 ACHD 诊断测试的频率。对于轻度和中度/重度先心病，最常用的诊断方式是心电图和超声心动图。百分之六十七的受访者表示，他们经常关注社会心理健康问题。目前报告的临床实践与已发布的指南之间存在差异。对于轻度病变患者的护理尤其如此。此外，ESC和美国指南之间存在一些差异，美国人建议更频繁地进行监测。