The number of people with dementia is on the rise worldwide, and dementia care has become the focus of global health services. People with dementia are primarily cared for by informal caregivers, with spouses seen as a particularly vulnerable group. Focusing on the spousal caregiving experience and having a good caregiver identity contributes to group bonding and enhanced social support. To explore the dynamic changes that occur in the caregiving experience of spouse caregivers and explicate the identity of spouses during this process alongside its causes. A qualitative systematic review. The following eight electronic databases were searched: PubMed, Web of Science (Core Collection), The Cochrane Library, Embase, CINAHL and CNKI, WanFang and Vip. The Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) and Joanna Briggs Institute Reviewer's Manual criteria were used to report the results. Study screening and data extraction were conducted independently by two reviewers, and quality was assessed using the Joanna Briggs Institute's Qualitative Research Standard Assessment tool. Data synthesis was performed using thematic analysis. A total of 15 studies were included and synthesized into three analytical themes: (1) attitudes and emotions toward dementia, (2) emotional ups and downs in dementia care, and (3) who am “I”. In binary care, patience and marital responsibilities are identified as facilitators, while care burden and social isolation are identified as hindrances. In addition, gender differences were identified as influencers of identity. In this review, spouse identity of people with dementia is complex and affects caregiving experience together with dementia cognition. Disease cognition, caregiving burden and social isolation are identified. Interventions for barriers are suggested to enhance social support.

中文翻译：

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痴呆症患者配偶照顾者的生活经历和身份：定性系统评价

全球范围内痴呆症患者数量不断增加，痴呆症护理已成为全球卫生服务的重点。痴呆症患者主要由非正式护理人员照顾，配偶被视为特别脆弱的群体。关注配偶的照顾体验并拥有良好的照顾者身份有助于增强群体联系和增强社会支持。探讨配偶照顾者的照顾经历中发生的动态变化，并阐明在此过程中配偶的身份及其原因。定性系统评价。检索了以下八个电子数据库：PubMed、Web of Science（核心合集）、The Cochrane Library、Embase、CINAHL 和 CNKI、万方和 Vip。使用增强定性研究综合报告透明度 (ENTREQ) 和乔安娜·布里格斯研究所审稿人手册标准来报告结果。研究筛选和数据提取由两名评审员独立进行，并使用乔安娜布里格斯研究所的定性研究标准评估工具评估质量。使用主题分析进行数据合成。总共纳入 15 项研究，并综合为三个分析主题：(1) 对痴呆症的态度和情绪，(2) 痴呆症护理中的情绪起伏，以及 (3) 谁是“我”。在二元护理中，耐心和婚姻责任被认为是促进因素，而护理负担和社会孤立被认为是障碍。此外，性别差异被认为是身份的影响因素。在本次综述中，痴呆症患者的配偶身份很复杂，会影响护理体验和痴呆认知。确定了疾病认知、护理负担和社会隔离。建议对障碍进行干预以增强社会支持。